Suspected Endometriosis advice

[painhater88]

This is my first post and was wondering if anyone could give any advice. I've been struggled with my cycle for years now and keept visiting the gyno. After all this time the word Endometriosis was used on my notes when i was having a scan. I've lost count how many pills i've been on to try and help my cycle and the only thing that has ever made me feel human was the Decapeptly monthly injection which i wasn't allowed more than six but they done that twice. Its the only time i didn't suffer but after coming of my cycles have never been the same.

I am on a new pill Dienogest mg2 at the moment which i'm on on the fifth 28pill box which i didn't bleed when i took the 7 day break bit now i'm on day 16 bleeding while half way through a box with all the pain and everything else. According to the leaflet in the box the pill just gives the same side effects that the injection does if on it to long so i don't understand why we can't stay on the injection.

My gyno appointment at the end of the week their meant to suggest doing a laparoscopy to see if i do ave Endometriosis and people keep suggested i ask for them to put the mirena coil in while they do. Problem is i worry about having this put in because of all the bad luck i've had with everything else and hearing about everyones horror stories having the coil i really don't want added torture. As i feel like my body is torturing me these days all my plans get ruined and i'm getting to that point its driving me nuts.

I really don't know what to do now as i just want a normal life not having to worry about it all. Any advice would be great because apart from being on day 16 of bleeding on this pill with no signs of stopping every other week i get all the signs of a cycle which is sending me nuts as its ruining my life.

Is the coil a good idea as i don't want even more suffering?

Many thanks Kelly

[Moon_maiden]

Hi

How did you get on with Gynae?

I can’t help re coil, not something I ever tried, but sometimes in desperation we’ll try anything. There are lots of posts about it so a search on the forum might help if you haven’t so far.

[painhater88 in reply to Moon_maiden]

Hi thank you for replying. I've been told i have to take the last box of my pitl i'm on then let nature take its cause until i get appointment for the lab. If i don't have the coil then they just look at pain relief.I feel like going back ten years.

[Moon_maiden in reply to painhater88]

I hope it doesn’t take too long for op. Maybe soon they’ll know more from research and something other than painkillers. There is research taking place. It does feel like there isn’t enough help at the moment I know.