Hi everyone, I'm new here and I had no idea where to find help - I mainly want to know that I'm not alone...as cliche as that sounds.
I had Adenomyosis and endometriosis for years, and had a full Hysterectomy when I was 29 (4 years ago). Things were amazing and I was finally pain free for the first time I can remember in my life! Then last year I started feeling occasional twinges of my original pain.. I was devastated and couldn't tell my husband as he had gone through so much dealing with me being in the pain that I was.
In a nutshell it's got worse... I couldn't walk today because of the agony- I got home from work and just went and curled up in bed. The doctor I'm seeing now is so sympathetic for once, and she referred me for an ultrasound - where they told me cheerfully they couldn't see anything and I was in great health 😑.
I'm being referred to the gyno clinic, but she's said (which I've heard before) that it can take a long while to diagnose and treat endometriosis... Which I should mention my doctor fully believes it is, possibly on the scar tissue from my operation if they didn't get all of it to begin with.
I'm mainly writing here as anonymously I can get my feelings out without having people to just tell me to "drink more water and you'll feel better" or have my family make "aw sorry" and not know how to deal with it.
I'm really sorry for the long post, but has anyone else had any problems with a resurgence of endometriosis following a full hysterectomy? (cervix, uterus and ovaries)
(to be honest, yes I'm in tears just being able to get how I feel off my chest but I'd this isn't the right place then just tell me to naff off)