Numbness and tingling / vibrations?

[Banders93]

Hi everyone, bit of a strange one but I can't seem to find any answers for this. I was diagnosed with stage 4 endo a few months ago. Recently I've been having a really strange feeling of vibrating / tingling in my lower back / toes particularly when I bend forwards. I also sometimes get a numb feeling in my toes / ends of fingers.

It's very odd and a bit worrying because everytime I google it it says I probably have MS! I wondered whether anyone else with endo experiences this?

Thank you, and wishing you all the best x

[Shorty9]

Hiya,There are a lot of nerves in the pelvic area, so if you have any endo on or around them, it can cause things like the numbness and tingling. I was diagnosed with stage 2-3 endo and adeno, I suffered with sciatica and numb patches in areas of my back. I've had a total hysterectomy and all endo removed and all of those sensations went in an instant. Do get proper medical advice as it could be anything, however from what you have described I had similar symptoms. I hope you get some answers!x

[Banders93 in reply to Shorty9]

Thank you so much for your reply - and sorry to hear you've been suffering too. I'm going to ask my GP definitely but I'm so used to vague answers from them that I thought I'd start by asking the endo expert community! thank you x

[Giraffegreen]

I get similar sensations, my endo wasn't graded. I do get tingling fingers and in my toes, I get weird sort sensations in my stomach as well. Yes if you google it it will say MS, personally when I went to my gp she sort of shrugged said I dunno come back if you get numbness going up into the arm. So I'm not sure if it's related to endo specifically but my gp didn't seem concerned.

[Banders93 in reply to Giraffegreen]

Thank you, I really appreciate that. I'm going to ask my GP too but interesting that you have similar symptoms. Sometimes it's hard to know what's endo and what isn't!

[Cocoacupid]

Yes hun it’s because you more like have it around pelvis and prob wrapped around your nerves like me it’s awful hun I get tingly in lower back sometimes after opening my bowels at times can hardly walk and get severe pain in my knees due to the endo wrapped around siataic nerves 😟 x