laparoscopy not made much difference - Endometriosis UK

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laparoscopy not made much difference

LauraCB13 profile image
5 Replies

hi,

had laparoscopy in Early March where they found stage 3 endo which was removed. I feel a bit disheartened that to be honest all my symptoms are the same. Initially my period was much less heavy however and I didn’t need as much pain relief, but the one I’m having right now is awful. Pains are bad etc.

is this just how endometriosis is? I thought that being so close post op I might be in the best position but I don’t feel I am which is a shame. 😫

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LauraCB13 profile image
LauraCB13
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5 Replies
Anniy profile image
Anniy

did you have ablation or excision?

KlP28 profile image
KlP28

Hello, I felt exactly the same as you are. Both myself & my consultant/surgeon were disappointed that after my laparoscopy, stage 4 endo, many fibroids, a very large amount removed. I was still in as much pain as I was in before the op. He tried me on Prostap injections & HRT for 6 months. The first 2 injections I was hopefully it was helping, but injections 3, 4, 5 & 6 no difference, other than my mood & emotions were all over the place & felt so rubbish. I’ve had now put me on amitriptyline (nerve ending pain relief/ calming), which fingers crossed has & 3/4 months down the line has halved the amount of pain I had been in. Hope this makes sense & wish you all the best xx

Potts22 profile image
Potts22

Hi I'm in exactly the same situation. My symptoms have actually got worse and I had my surgery in October. I was quite surprised that several doctors acted like this was unheard of and I feel like I went through all of that for nothing. For now, I am on just the pill but it isn't helping. So I have no answers but am sending solidarity! I think it's key to keep pushing for answers and support from doctors.

LauraCB13 profile image
LauraCB13

thank you. I’m seeing my surgeon in a few weeks actually so will see what he says

Lindle profile image
Lindle

Was it done in a specialist endo centre?

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