does anyone have interstitial cystitis? - Endometriosis UK

Endometriosis UK

70,670 members52,133 posts

does anyone have interstitial cystitis?

Sky342 profile image
3 Replies

I have been experiencing pain when peeing for coming up to a year now. I have got my urine tested probably over 8 times over the past year. Every time it comes back clear, or they tell me to take an antibiotic and then send my urine off to the lab but then it comes back normal. I feel a ripping, burning pain and feels like I’ve the worst uti. It will come and go but it’s been here for over a month now.

Written by
Sky342 profile image
Sky342
To view profiles and participate in discussions please or .
Read more about...
3 Replies
rumpelstichen profile image
rumpelstichen

I started having urinary issues 24 hours after the Covid vaccine (frequency, constant urge...), doctors said it was interstitial cystitis after several tests that came out empty. Wrong, I had a severe reaction to the vaccine and nobody would admit that. Sorry I can't be more helpful but do check the timing of your first symptoms.

Sky342 profile image
Sky342 in reply to rumpelstichen

thank you

Hooplove00 profile image
Hooplove00

I do! Does your bladder spasm sometimes too?

You may also like...

I'm 23 and have been diagnosed with Endometriosis and Interstitial cystitis. Does anyone else have this? How do you cope?

insides so that alone is painful and combined with the bladder problems I am feeling really low. I...

Endo on US ligaments and interstitial cystitis

and every time my urine sample would come back clear. I eventually had a cystoscopy where they...

Interstitial Cystitis - Rigid Cystoscopy

Endo, interstitial cystitis and IBS - anyone else?

syndrome). Yesterday, after years of symptoms and a few weeks of tests, I have been diagnosed with...

Interstitial Cystitis

Hi everyone. Has anyone else with endo also been diagnosed with interstitial cystitis. Had...