does anyone have interstitial cystitis? - Endometriosis UK

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does anyone have interstitial cystitis?

Sky342 profile image
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I have been experiencing pain when peeing for coming up to a year now. I have got my urine tested probably over 8 times over the past year. Every time it comes back clear, or they tell me to take an antibiotic and then send my urine off to the lab but then it comes back normal. I feel a ripping, burning pain and feels like I’ve the worst uti. It will come and go but it’s been here for over a month now.

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Sky342
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3 Replies

I started having urinary issues 24 hours after the Covid vaccine (frequency, constant urge...), doctors said it was interstitial cystitis after several tests that came out empty. Wrong, I had a severe reaction to the vaccine and nobody would admit that. Sorry I can't be more helpful but do check the timing of your first symptoms.

Sky342 profile image
Sky342 in reply to

thank you

Hooplove00 profile image
Hooplove00

I do! Does your bladder spasm sometimes too?

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