Surgery today stage 3 endo: Hiah Today I... - Endometriosis UK

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Surgery today stage 3 endo

D2594 profile image
5 Replies

Hiah

Today I had the long waited laprscopy. Whilst in surgery they removed tissue from my womb, ovaries, rectum and up to my kidney stating it was stage 3 endo with previous scar tissue.

I am to have my last decapeptyl injection on the 11th Jan following 4 weeks of HRT.

Afterwards there's not much else, I know that it can grow back fir some time like 2 years as like my previous op.

I've tried the pill, marina coyle nothing worked apart from the injection keeping it dormant.

Is there any suggestions regarding health choices etc? I really want to have children also...

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TogetherWeAreStrong profile image
TogetherWeAreStrongModeratorEndometriosis UK

Hi D2594 I hope you are recovering well. You should have a follow up appointment with your consultant and you can discuss next steps/options available to you then.

In the meantime we have a great Webinar from a few months ago - Getting the most out of your Gynaecology Appointments with Joanne Hanley - Endometriosis UK's Specialist Advisor and Advanced Clinical Practitioner at the Northwest Pelvic Pain and Endometriosis Centre.

Below is a link for you, that may give you some ideas as to the questions you want to ask in that consultation:

endometriosis-uk.org/webinars

Stay strong.

D2594 profile image
D2594 in reply to TogetherWeAreStrong

Hi

Thankyou so much for this, I will call my GP and ask to forward on for a further appointment with my consultant.

Thankyou I appreciate your sending across the webinar I will have a listening.

Have a wonderful new year

TogetherWeAreStrong profile image
TogetherWeAreStrongModeratorEndometriosis UK in reply to D2594

My pleasue D2594 it's what we're all here for to share and support and the webinars are fantastic. Have a wonderful new year too and a speedy recovery.

Marcia71 profile image
Marcia71

with stage 3 endo you must be treated at bsge specialist centre and you would then have a follow up at 3 and 6 months at least. If you’re not at a bsge centre ask gp to refer you on.

D2594 profile image
D2594

I am at a bsge center in Colchester I believe I am just awaiting a follow up appointment with the GP

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