Does prostap 3 work for endo stage 4?

[Anita80]

Hi pls can someone help I am 35 and was diagnosed with endometriosis stage 4 in March this year. I've been put on prostap 3 injection for 12 month, I had my 2nd 3 month injection the other day. I am worried it's not working as I have got that dull ache all the time and cramps most days. I have also swelled up again. I am struggling at the moment coming to terms with everything and don't feel very positive about anything. Day to day things are a struggle I am managing to work and do housework, shopping etc but then I know about it afterwards because pain gets worse and I am very tired and achey. I feel pathetic because so many young girls manage to cope with this all the time. I really need some advice of anybody so I can start focusing on what's next and being more positive pls reply I feel I need ant information I can get however small look forward to hearing from you

[Catness]

Although I unfortunately don't have anything helpful to suggest (sorry I personally turned down prostap injections) I just wanted to send hugs as I too am feeling really down about my illness at the moment and now that sometimes it just makes a difference knowing someone is thinking of you x

[Anita80 in reply to Catness]

Aww thank you I hope you start to feel better soon it is such an hard illness to get your head round thinks it's because we don't look ill

[Hidden]

Hello, I had had two laparoscopic surgeries to remove endo and afterwards was placed on both prostap and the mirena ( I had stage 4) I was still bleeding and cramping but my doc worked out my cycles and I actually needed the 12 week prostap injection every 10 weeks. I was on this combination for over 5 years until last September when I had a total hysterectomy.

The combination did help relieve my symptoms- I was also put on hrt at the same time.

[Anita80 in reply to Hidden]

Thanks for replying I haven't had any surgery yet apart from laparoscopy to diagnose the endo and at the same time they ruptured my large chocolate cyst. I already had a Mirena in as gynae changed it from a copper one. I still haven't been referred to a endo specialist. So did you have prostap for 5 years?

[Anita80]

Hi thanks for replying, I was diagnosed by lap after having ultra sounds, mri to measure a ovarian cyst which was filling up fast and they ruptured the chocolate cyst when I was diagnosed. I am still under a gynae which he said was also a cancer specialist. I don't understand why I have not been referred to a endo specialist. Thanks for letting me know that I should get referred to a specialist. I have been put on livial for hrt. The endo was found all over my insides my ovaries, bladder,bowel and my pouch of Douglas as I was bleeding alot when I had my bowels open especially during my period. It is still very painful to pass urine and to have my bowels open.