Endo clinic consultation

[SS44AS]

Hello,

I have got my first zoom consultation appointment this week with the Endo clinic after being referred because I have DIE.

Can anyone advise me what to expect from this appointment? Also any tips on what questions I should be asking the Dr?

I am scared I end up forgetting something after waiting so long for the appointment and I am starting to write a list of things to discuss.

Any help is much appreciated 🙂

[Moon_maiden]

Hi

If you can have someone with you, an extra ear if nothing else, if you do let the Gynae know. It shows you have support and less likely to brush you off.

Writing down all your symptoms, history etc. will help, I always do it. Don’t let them rush you through it.

The Endo uk site has some great info for getting the most out of a consultation and I think the RCOG has some as well.

If they are going to operate make sure there will be a colorectal surgeon there as well. That will hopefully avoid further surgery.

I’m sure you won’t need it but good luck and let us know how you get on

[SS44AS in reply to Moon_maiden]

Thanks so much for your reply.

My husband is going to be on the call with me in case I miss anything.

I am going to sit tonight and write down all my symptoms and hopefully at my appointment on Thursday I will get some answers as to how bad it is and what's going to happen going forward. The results of the MRI scan have never been discussed with me fully, I was just told it was deep infiltrating and that I was being referred to the Endo clinic.

I will let you know how it goes.

[Moon_maiden in reply to SS44AS]

That’s great your husband will be there. It’s stupid but it’ll make a difference.

Include asking them about the MRI more in-depth, don’t forget you can request a copy of your hospital records/results as well.

Have a search on the forum you might get some other ideas.

Please ask anything and I’ll help if I can. I’ve had good and bad consultations, still forget if I don’t look at notes or give them my notes.

🤞 for you 🙂

[SS44AS in reply to Moon_maiden]

Thank you so much. I hope things are much clearer after my appointment tomorrow 🙂

[SS44AS]

Had my consultation today and confirmed deep infiltrating endo, adenomyosis, chocolate cysts on both ovaries! I am now on the waiting list for a full hysterectomy. I am happy with this as I am lucky enough to have 2 beautiful daughters and i have had treament twice before after abnormal smear tests. Just a waiting game now.