Is this medical gaslighghting??

[Heartof3]

Hi ladies,

So after my lap, i was told i have adenomyosis but to ignore my diagnosis.

Apparently adenomyosis shouldn't cause daily pain, only pain around my period? I have flares most weeks!?

This is what was written up!

I mean, how can it look entirely normal but after my lap,i was told i have a slightly bulky womb with pukering? But in the next breath, adenomyosis could be causing some of my symptoms, but probably not because i suffer alot? I mean,what the hell. Confused 🙈

Would this confuse you??💜

[me94]

Maybe get a second opinion from another gynae dr or go to an endo specialist. As i heard loads of gynae surgeon can miss endo lesions. Also it is very deflating to have pain frequently and not know the potenital cause of pain

[Heartof3 in reply to me94]

i really wish I had the money to go private. But unfortunately we get what we're given in my hospital. Even after complaining,I am left with this same specialist

[Jingles11]

Hi Heartof3

Definitely get a second opinion it’s a very confusing letter!! often adenomyosis and endo are present together.

I have both and from what I understand the adenomyosis causes extremely heavy bleeding and pain and the endo causes an almost constant pain in my ovaries.

I’m waiting for a hysterectomy at the moment and having Prostrap injections which have stopped the endo pain but not helped much with the adenomyosis bleeding

[Heartof3 in reply to Jingles11]

I forgot to mention, I did complain after this& I have now been put on the list for a hysterectomy, with this same specialist.

it just really upsets me that it's took years of battling to be heard, only to get treated like this. As if we're not confused enough by this pain 😖 💜

[AllthatGlitters]

hi I have adenomyosis and endometriosis! I got diagnosed with adenomyosis via MRI scan so it was 100% diagnosis. Been told it this that causes my heavy bleeding, flooding etc and endometriosis causes the horrific labour like pains. I would definitely ask for further tests to get a definitive diagnosis. You want to know, it’s your body and your right. Both of theee conditions don’t just appear around period time (if only) it’s pretty much constant with the pain going from manageable to being on tramadol at home or morphine in the hospital.

Hope you get some clear answers soon x

[Heartof3 in reply to AllthatGlitters]

so true!

I am waiting for a hysterectomy now.

iam currently laid in bed today, feeling like im in labour, just awful isn't it

[Jingles11 in reply to Heartof3]

I know how you feel, it’s so horrible not knowing when it’s going to end ! and really affects mental health too. Sending love to you and all the women having to go through this.❤️

[Heartof3 in reply to Jingles11]

so true.

aww thank you.

u2💜

[Avourneen]

Did you have an MRI scan before this lap? A lap should not be done before an MRI. Laparoscopy often misses adenomysiosis and is not very well diagnosed via a lap. An MRI can spot it easily and immediately, also an MRI should be done before a lap so that if you have no endo you don't have an unneccessary operation.

If your surgeon did a lap without an MRI first they are probably not a very good surgeon.

Get an mRI it will tell you if you have adenomysiosis and if there is endo that should show up too.

I have adenomysiois and severe endo and I'm in pain all the time but it could be something else causing the pain, there are many other things that can cause pain in the abdomen (gall stones, hernia, kidkey issues, bowel problems etc)but having an MRI will let you know if you have adenomysiosis for sure. if it's not that you can investigate possible other reasons.

[Rainbow2468 in reply to Avourneen]

Hi there i recently was told I have signs of endometriosis and that I have adenomyosis via an internal ultrasound. Anyway I saw a gynecologist and he said he wanted an mri and made a referral. I had to have a second ultrasound as at the first one the person doing it wanted the consultant to have a look too. Anyway she said I've canceled your mri you don't need it. Did the ultrasound and then said oh yes they will want an mri because of the cysts. On reading your comment. I'm thinking no the gynecologist obviously wanted it to make sure of the adenomyosis and endometriosis. She did say she would re oder the mri so hopefully I'm back on the waiting list for one. But thank you for the above as now I'm much better informed over why the gynecologist wanted one. ❤️

[Heartof3 in reply to Avourneen]

after complaining about this specialist, I am nowon the wait list for a hysterectomy. But I've never had a mri scan, only a normal standard scan. I'm wondering if it's worth asking my doctor for one? I spose it's not that simple tho

[Rainbow2468]

Hi there yes it would confuse me to be honest. I've been told I have adenomyosis and signs of endometriosis. I have a friend who has endometriosis too. Now from what I've read via this group and my own research endometriosis causes lots of pain all of the time. Now fair enough I do get a lot of pain on my bad period days, usually when I flood or have large clots, sorry if too much information. But otherwise not a lot, sometimes I get what feels like trapped wind but not often. So I'm confused too to be honest. Anyway back to you, yes I most definitely agree this conclusion so to speak is most confusing isn't it. I do hope you get better answers soon, sending a big hug ❤️

[slinky00]

This is really disappointing to read! I am really sorry for your experience.

I have adenomyosis and whilst it only affects one side of my junctional wall (uterus) it has a detrimental affect on my day to day life in a huge way, whether I am menstruating or not.

I regularly see an osteopath, receive acupuncture and have drastically changed my diet to an anti inflammatory one with the addition of systemic enzyme supplements to support me in handling this debilitating condition.

Research has shown that it can cause immense low back pain, with transference down the legs. It can cause digestive issues also.

[Heartof3]

same as you , mine is my right side! It's just awful. The more active I am, the worst the flare will be.

my pains is in my back , down my legs & feels as if someone is squeezing my womb. The tiredness is awfull too. Aswel as wind. For years I thought I had ibs,until it got so severe after last Baby😖💜