Feeling badly sick quite a lot - Endometriosis UK

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Feeling badly sick quite a lot

Jsrzb profile image
20 Replies

Does anyone feel really sick with endo I can’t work out if it’s the Endo or what? Im actually fed up of feeling like I need to throw up !

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Jsrzb profile image
Jsrzb
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20 Replies
Clara12 profile image
Clara12

Yes I feel sick quite often, mornings and at night whilst trying to sleep are the worst. I don’t throw up from it much though, more just the feeling that I might. Unless I’m on my period. I throw up on my first and sometimes second day of my period most months which I think is more related to the high levels of pain that I get at that time

Aussie79 profile image
Aussie79

Hi Jsrzb, sorry to hear you're feeling bad. Yes, I get nausea with Endo, especially when I'm in a lot of pain and always the day before and first couple of days of my period. Hormonal fluctuations can also cause nausea. I think it's quite common. My GP has prescribed antisickness tablets. Hope you find some relief soon.

Narcica profile image
Narcica

Hi,because of the impact on the digestive system you feel IBS-like symptoms. Often because of trigger foods. For example foods that high in FODmap. Eliminating/reducing intake of this food can improve your symptoms. Although you can still experience some of them. Ask your GP for cyclizine and you can also request a food intolerance test so you might find other types of foods that can trigger your symptoms such as gluten and/or lactose. I’ve been struggling with stage 4 endo for two decades and a part of my bowel has been removed due to the impact on it. I would encourage every woman to check up on their digestive problems with a gastroenterologist. Push the GP if they say no. It can save your life!

BattyForBats profile image
BattyForBats

Yes I feel sick with my endo too. Some days are great and I don't feel sick and other days it just there all day and struggle to feel eating.

2947 profile image
2947

I suggest you see a doctor to know exactly why you're feeling that way get some test done

A5555 profile image
A5555

It’s quite common especially if you’re in a lot of pain x I used to vomit every month due to awful pains but I went on the pill to reduce the pain and I no longer felt queasy x

Strongspirit7 profile image
Strongspirit7

Yes it's quite common to feel this way. I often find I feel like this before a cycle and often worse a few days after a cycle. I often describe it as a bit like morning sickness to those who have children. Mouth can water, and feel like vomiting, faint, dizzy, feel like my ovaries are being twisted. Super tired. Tingling feet, numb legs and a sphere of pain that wraps around hips, abdomen and lower back. Endometriosis really is challenging ❤️

nikkimatt2019 profile image
nikkimatt2019 in reply toStrongspirit7

Do you also have symptoms with the endometriosis like everything is tightening alot pain cant kept anything down also like some type of blockage also? And you find your going a wee and poo constantly but when weeing hardly much comes out? Also what stage endometriosis are you plz?

Strongspirit7 profile image
Strongspirit7 in reply tonikkimatt2019

At different times it varies. Sometimes yes need to wee often. Bowels unfortunately very unpredictable and often extremely loose. Very embarrassing. Very fatigued during and mostly just after a cycle and now the first day of my cycle the blood is dark brown/black which is old blood and tissue. I don't take strong pain relief because I don't want my body to become dependant upon these medications and become dependant upon them. I understand many do need them but I have never been good a taking medication anyway. I find other ways to cope during bad spells. The pain wraps around my hips, abdomen and lower back and legs go numb sometimes. Feeling faint occasionally so just need to rest during those periods ❤️

nikkimatt2019 profile image
nikkimatt2019 in reply toStrongspirit7

Sound a possibility you may have also polyps as I've had that many times before in the past and I had to have operation because they left me so long to point I was close of hace tumours and cancer. But that runs in the family. Plz dont give up and speak to them i know scams can be frustrating but its worth knowing having them scams what shows up 9n there so u know what your dealing with. Plz d9nt let God and hospitals win fight for your rights honestly I think other girls and women 9n here will say same. They tend to push u away so u d9nt go back then they dont have to deal with u. But the more u push and push and go on and on they mostly eventually listen. It's taken me many many years for me to get where I am its frustrating and hard. But we are survivors and we fight for are bodys and health. Dont let them brush u under the carpet u are a strong women. And plz promise to get another appointment just dont give up honestly it ve worth it in the end. Also do you know what stage of endometriosis you have?

Strongspirit7 profile image
Strongspirit7 in reply tonikkimatt2019

Stage 4 lovely and two cysts on left ovary. I had a cyst that imploded which was so painful. Yes it's difficult when some things have similar symptoms however you are correct to continue pushing for a diagnosis if you know there is something different happening to your body and if your health is deteriorating. 🤗 I wish you all the best with your progress

nikkimatt2019 profile image
nikkimatt2019 in reply toStrongspirit7

Thank u with the cysts was u able to feel them on outside of your stomach? I have massive ones and might be fluids cysts I'm not sure but I can feel them on outside. I have loads on inside but dont know what they are as hospital and doctors ain't giving me scans I have gp today so hopefully they can give me a scan. I dont know what's going in but for months I've been throwing everything up all time from endometriosis even fluid cant keep anything down I'm constantly in pain with ovaries and sides and my stomach is tightening so much it hurts all time. I think I may have something wrong with my digestive system also.

nikkimatt2019 profile image
nikkimatt2019 in reply toStrongspirit7

I'm sorry u have that. I wish they can tell me my stage as I'm not sure what stage but I think 100% I have stage 4 endometriosis. Its frustrating I hate it all and no one understands any of this.

Strongspirit7 profile image
Strongspirit7 in reply tonikkimatt2019

It's sounds like you are suffering and the pain and symptoms are causing you to be physically sick. Hopefully when you see your GP and discuss all of the symptoms you are experiencing they may put you on a list for a scan which will probably ease your tension which can also cause tightening. It would be great to have more specialists trained in this particularly as it is something that many women suffer from but should not have to endure the affects for such long periods of time awaiting diagnosis, scans and operations to ensure they have a better quality of life or before the condition deteriorates to a level resulting in permanent damage. Such as the bowels ❤️

nikkimatt2019 profile image
nikkimatt2019 in reply toStrongspirit7

Hi thank u for replying. Yes ive been to gp they see I was in pain and pressed on my tummy now more pain. So shes referring me for another scan asap. They also took my bloods so hopefully we can get some where this time. They are still trying to force me to have coil saying alot women has had it and apparently it works and it's good etc

Strongspirit7 profile image
Strongspirit7 in reply tonikkimatt2019

Great that's positive. I had the same but lost a lot of weight when they checked my area of concern and yes very painful to press on my abdomen. I hope the scan clarifies the issue. Keep me updated and good luck 😊

Strongspirit7 profile image
Strongspirit7 in reply tonikkimatt2019

As for the coil I find it beneficial and one less thing to worry about. I have a copper coil but will be swapped to a mirena coil during op aswell. 👍

nikkimatt2019 profile image
nikkimatt2019 in reply toStrongspirit7

Gp and hospital wont do nothing for me they always neglect me they dont take my health seriously to point more damage and health problems happen because none is being treated sooner.

Ballet22 profile image
Ballet22

When I used to get a bad period I used to be sick a lot I think it’s the way are bodies deal with pain Now they have put me on the pill I get no pain at all only a slight cramp sometimes

Mimsyflibbles profile image
Mimsyflibbles

Yes I felt nauseous and vomited quite a bit. It was severe endo with a frozen pelvic by that time and so had IBS symptoms as well. I've been on Noresthisterone since diagnosis 5 years ago and everything is pretty settled now.

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