Dienogest / Visanne Experiences - Endometriosis UK

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Dienogest / Visanne Experiences

Dolly51 profile image
3 Replies

Hi.. I have been prescribed Dienogest by my endo specialist to help control my pain symptoms whilst I wait on excision surgery, does anyone have any experience with this drug they could share? I have been looking into the side effects just wondering how common they actually are. Thanks ☺️

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Dolly51
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Mumpet11 profile image
Mumpet11

I have also just been prescribed this but looking at some older posts on this, there seem to be quite a few side effects. I am a little nervous about taking it now, but it is an option for me before I embark on my second surgery.

Please do let me know how you get on!

Looking at this study contemporaryobgyn.net/view/... (though not sure how reliable it is) the side effects I’m most concerned about are reasonable common:

The most common side effect was abnormal vaginal bleeding, consisting of prolonged and frequent uterine bleeding or spotting (16.6%), followed by weight gain (8.3%), headache (8.3%), depressed mood (8.3%), dizziness (4.1%) and libido reduction (4.1%).

Wishing you all the best of luck and sorry you’re also going through this.

Thecraftyadder profile image
Thecraftyadder in reply toMumpet11

I've added my recent experience with it below which you might wish to read to. Hope you find it helps

Thecraftyadder profile image
Thecraftyadder

I've been on it since September and I'm also awaiting surgery like you. I was very scared of the side effects to. I do not get on well with artificial hormones. Out of everything I've tried this has been the most manageable from a mental health view. Sometimes I'm more down or anxious but I'm also perimenopausal so had to say for certain the cause. I've had headaches and my hair is probably a bit lanker than before. I also gained half a stone in weight which I just can't shift. This is frustrating as I'm now classified as overweight according to my BMI and my cholesterol is a little raised. On the plus side I've only had little bleeding/spotting for a few days this calendar year where as before I was super heavy/flooding each month so it's helping me function while I wait for surgery.

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