Feel a little stuck

[HoneyBee2315]

I was told about 4 years ago I had endometriosis, at the time I wasn’t fully aware of what it was just told I needed to take the pill and that should sort things. In the last year or so I feel I’m just feeling more run down and there is always something going on be it pain , loads of bleeding , feeling sick, tiredness, anxiety and hormones. Last year I was told I also now have a small fibroid, there are days my bladder is a nightmare and I feel I need a wee a lot more then normal.

I was considering having the key hole surgery but my consultant wasn’t very positive about it, so now it’s scared me a little, I am not in on the floor curled up pain while I’m on the pill but there is pain most days and other symptoms.

I was wondering if the laparoscopy helped with other symptoms not just pain.

Also does anyone else suffer badly from hormones and anxiety with endo ?

Thankyou for taking the time to read / comment xx

[Doriangreen]

Hi there. So sorry to hear all those symptoms that you are experiencing. I was just wondering how they confirmed that you had endometriosis? As far as I’m aware the only way it can be diagnosed it through laporoscopy - which is what happened with me - and then they zap the endometriosis whilst they are investigating if they find it. My pain and fatigue definitely improved after I had mine and I got pregnant the next time of trying after 2 years of no joy previously. Being on the pill masked my problems and it’s definitely not the solution. I know lots of people feel better after the laporoscopy. I had mine over 2 years ago and since having my baby and stopping breastfeeding I probably need another one in a few years as my flare ups are creeping back in. I hope you get some resolution. My biggest piece of advice is advocate for yourself because you know your body best and how you feel. Good luck

[HoneyBee2315 in reply to Doriangreen]

Yes I did some research and found out that lap is how they properly diagnose it, the consultant I saw was very much a pill pusher and said u dont need anything else I’m telling you what it is so why would you want to have major surgery... made me feel like I’m putting myself at risk having it .

I am going to ask for a different consultant I think as like yourself I was hoping to try and get pregnant and start to move forward health wise, I think even tho I’m terrified it’s better to know what’s happening inside.

Thankyou for taking the time to comment on my post ❤️

[Doriangreen in reply to HoneyBee2315]

Gosh that’s so frustrating, I’m so sorry that you’ve had that experience. I find that that’s the perspective a lot of consultants have… just before I went down for my surgery a consultant I’d seen before for my PCOS said “I don’t think you have it (endo) but we will see” - like what a thing to say because how could he ever know just by looking at someone? Perhaps write a list of all your symptoms (that’s what I did) and explained how debilitating it is. I was nervous before the surgery (natural) but it was so worthwhile. I also wonder if it’s worth reiterating the delay in women experiencing symptoms to getting a diagnosis because we are generally so fobbed off by doctors! I was 13 when the pain started and only got diagnosed at 34 and during that time was just prescribed pain killers and the pill. It’s so wrong!

But good for you for taking control of your health. Seeing a different consultant sounds like a great idea. Good luck!