Reoccurrence of endo post surgery - Endometriosis UK

Endometriosis UK

70,734 members52,159 posts

Reoccurrence of endo post surgery

Pocketbutton profile image
2 Replies

I’ve just joined this forum as support seems lacking elsewhere! I had my laparoscopy in October where I had adhesions, cysts and endometriosis. I was told by the consultant /surgeon that she got everything and it may take years to return if ever. I left feeling full of hope, and those first poops the week after were a dream haha! (No nausea or pain!)

The first two periods were very mild and I was so grateful but by the third one came the pain was about 80% as before and fourth one back to near 95% before. Already pain and nausea during period, during poops, random spotting and I can feel adhesions growing and tearing inside me. Im absolutely heartbroken because I thought I had more time, and all info online seems to suggest 70% of women don’t get reoccurrence for years and it may only happen sooner if not all of it was removed. Has anyone else had this experience, and what was your next steps?

Much appreciated! :(

Written by
Pocketbutton profile image
Pocketbutton
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Marcia71 profile image
Marcia71

It can depend how it was removed. Was it ablation - burnt off? That tends to return quicker than if it is excised - cut out. You need to be with a Gynae who has special interest in endo. I unfortunately had no relief in fact pain for worse straight after surgery as mine was done by a general Gynae without the required training.

UnderAngelWings profile image
UnderAngelWings

I am truly hoping that your pain is healing pain.

Please try magnesium oil spray and Epsom salt baths.

Wishing you healing and hope.

May your Angels ever guide you and guard you.

💎

You may also like...

Likelihood of reoccurrence after surgery?

\\"mild\\" endo. I'm in pain every month at ovulation and crippling pain during periods never mind...

Surgery making endo worse?

I had a laparoscopy in december and since then I have had a lot of problems with my ovaries,...

Adhesions/Endo post c-section

experience pain on and off my period, and it plays havoc with my bowel too. I experience referring...

Day 2 - Post Surgery

afterwards; oh and of course the pain but when you’re a bit delirious on pain relief that’s kind of...

Anxious - Endo and bowel surgery

group when I discovered I had endometriosis. I’ve since had a laparoscopy which has confirmed severe