Does anyone get sharp shooting pains up their vagina if u sit down too quick?
I also have to sit at a certain angle as it feels as if my uterus is crushing.
If i sit down too long it also feels as if everything has inflamed.
I swear these pelvic pains are turning me into a robot 😵
Does anyone else experience this? X
Yep. Especially in a flare up. My work bought me a doughnut cushion meant for piles and it is a godsend x
Yes. Thank you for posting it! Sometimes i think I am going crazy with all these pains. Glad to know that I am still sane and it is endo.
There can be so much more to do than just "bad periods" there really needs to be more info on it all. For years I was always told... "U just have painful ovulation. Oh u have tilted cervix that can cause pain. U are just more hormonal. Your dizziness is virtigo. U need more iron that's why you're so tired. U have cysts in your ovary that come & go. Let's give u more pain killers for your back ache!"
The list has gone on for years.
It's not till I had my Son 4 years ago that i needed blood transfusions & IV antibiotics for a endometrium infection that's now left me with life ruling pain everyday, It's now that it all makes sense & all these other weird symptoms all point towards endo.
It certainly is enough to send us bonkers aye!
But we're not & we got this ❣💪😊
Hi
Not only do I get them in my vagina but also my rectum. Its horrendous..I can be standing doing nothing when it happens..
I’m the same as you Ronsk with those areas. I literally feel like I’m being stabbed, I try & hold my breath or breathe as slow as possible because even that increases the pain. I always tend to ‘lean to 1 side’ when sitting, will always take a chair with an arm rest so I can lean to the side rather than flat.
Sometimes when I’m at work I have to lean to one side and cross my legs so my left butt cheek doesn’t touch the chair. I seem too relaxed to others meanwhile I’m suffering through pain.
😞 such a silent disease isn't it x
It’s awful. I also have it in my c sec scar. Leads right to womb area, dam Drs before kept telling me it’s infected or they left a stitch after emergency op because monthly or normally more this thing swells up in middle & blood/muck etc comes out. (Sorry if screamish). Had ruptured ectopic 9yrs ago & pain & scar vile ever since. Finally after an mri & consultant looking over they can see the endo here also hence the pelvic stabbing. Team that with the adenomyosis it can be unbearable. Did actually feel validated though once I saw a decent consultant & had the mri!
Ouch! Sounds awful, bless u.The crap us woman go through 😖
I had a endometrium infection after the birthof my son 4 years ago. I had a prolapse surgery nearly a year ago & since then my pains have been life ruling x
Prolapse surgery oh no. Is it better now? Its so frustrating the pain because it gives u no warning. U are standing there fine 1 min & bang you’re in agony, I literally need to curl up in a ball. People honestly don’t understand Not that I’ve told many being as I’m practically a hermit these days
It's removed the bulge & I can go to the toilet easier but the pains in my pelvis & groin, back & kegs is awful now. Gynea thinks the infections & operations have caused more painful scaring 😖 so i feel like I've swapped one problem for a more 😏
I no 😖 like random electric shocks isn't it.
I'm the same. This site feels like my only social life now.
I give up going anywhere just to pay for it with extra pain after.
Explaining to people just makes me feel stupid. Such a silent isolating disease isn't it 😞 x
Horrible business, you’re right about the 1 thing for another. The adhesions (scarring is what worries me), they have suggested I have full hysterectomy as couple ‘masses’ they are unsure of. 1 in uterus & 1 above ovaries, they said ‘probably’ adenomyosis & endo but want to biopsy 1st. Said will also cut/laser away endo while in there & adhesions & remove endo from c sec scar, my worry is though that the endo is also in bowel as get a lot of stabbing there & they think could be where previous ops & scarring stuck bits together internally. (Was explained better). I really don’t even want to have the laparoscopy & hysteroscopy done tho & no way I want a hysterectomy.
Totally traumatised me waking up in intensive care a week after my ectopic ruptured, the thought of anything internally again freaks me out because they say risk with all procedures. I feelWhat if they nick something internally or pierce something & I end up with even more problems? I dunno 🤷🏻♀️ when I get a really bad flare up I think that’s it I’m having it done I can’t take it, then it dies down & o think no I’ve lived with it this long is rather just suffer than risk anything else.
& again you’re right about the isolation, I have fibro & chronic pain also (sound like a right old moaner sorry). I think I’ve literally told about 5 people, 3 of them family!! 1 of the friends I’ve lost because even after seeing the bag of monthly medication must still presume it’s only a headache & bad period! I don’t understand it myself, as in what causes why have it etc so for others who don’t have or who have never felt the pain it’s hard to imagine, wouldn’t wish it on worst enemy, I have tho a couple of times said 2 OH & daughter when I feel I’m being taken for granted I wish u could just fee It for 5mins. So frustrating.
Aww i bet 😞 that must of been awful for u. It is scary.It's bad enough being in pain but physically & mentally draining trying to think whats the best option to go for. X
HiMy mom is also having these pain and she is really struggling for doing every day house chores. Sometimes she is feeling sick.
But we don't know the reason of this pain does anyone know ?
Dr always said that you have urine infection thats why .
Bless her, it's not nice.one of my symptoms is the feeling of recurring water infections (but for me, they're not actually infections, Just inflammation)
Ask her to keep a diary of all her pains & niggles. Through doing this myself I could see a cyclical pattern to it x
Some of my Endometriosis symptoms also presented like a water infection. Pain right above my pubic bone and not being able to hold my urine for long. I found out it is being caused by endometriosis on my bladder. Does your Mom find her symptoms are worse before or during her period or during ovulation?
Yep, shooting or stabbing pains when I sit, used to only be on my period, but can happen anytime now, even if standing. Also often get the same pain when I have a bowel movement or break wind when I'm on my period, sorry if tmi! 🙈
Yep, same 🙈 sometimes I struggle to b breakwind aswel.Like electric shocks x
Glad it's not just me, my gynae had a look of complete confusion when I mentioned it to her x
Yes definitely, I can’t do a desk job anymore because after my last surgery it became unbearable to sit. Xx
thank the gods its not just me! phew thought i was going crazy! i can't sit still too long and only comfortable leaning in armchairs
You're not going crazy. Seems there's alot of us with these symptoms. I love this site ❣
Yes, all the time to the point I had to work from home so I can sit on my knees ! It feeld like a knife point at my cervix and in my rectum, with an awful pressure sensation ! My Consultant thinks it is due to rectovaginal endo which is triggering nerves when sitting. Now have pregabalin and on waiting list for bowel surgery. It's awful and I find it hard to explain the type of pain and sensation. No one seems to get it fully when I explain. x
We get it, you're not alone ❣Bloody awful isn't it.
I had rectocel surgery nearly a year ago. My posterior wall basically prolapsed into my vagina 😖 x
Yes, absolutely the same thing happens to me like every day. I'm not sure how severe my endo is because I haven't heard from my consultant back after the MRI but this pain drives me mad.
Does anyone else get pain under their ribs?
Constant pain - anyone else have similar symptoms please?
Does anyone else also have cliterodynia or vulvodynia? (painful clitoris/vulva)
Back pain, anyone else? 
Pain with sitting down?
