Pain from laproscopy months later

[Avalonlea]

Hello... just wanted to come on here to get a little positivity from you all. Feeling really low of late... well even more than I usually would. Soooo I had my laproscopy to remove Endo in May 2021. From day one... I really struggled with sitting up as I had excruciating pain. After 8 weeks off work I returned (even though still not great), I still have this pain when sitting in my lower back. I have been to the docs in two occasions in tears because nothing would help me pain wise. Since July I have been put in probably and been given physio as I have been told I have nerve damage. Its only recently since talking to another doctor they asked 'was you asleep when yiu had your op' .. 'urm yes for about 3 hours, the best sleep in a while ha ha'.. she thinks that maybe could be some damage from being moved about during the op... so have referred me for an X ray and MRI. So we shall see.... I'm just feeling low because I haven't felt the benefits from my laproscopy because of this after pain... and also I have been given a written warning through work as 'unsatisfactory absence' as classed the pain aim having since the op as a second sickness... even though I was off for the one period and this is all part of my op. Has anyone gone through this extra pain from the procedure and give me advice? Just feeling a bit lost. I hope you are all well. Xx

[Natagee]

Feel for you, I had excruciating pain for about 6 months following my laproscopy. If you have worked for your employer for more than 3 years you can take them to court for unfair treatment/unfair dismissal. Good luck and remember you ARE allowed low days, sometimes takes a couple of months to feel really alive again, (took 6 mo this for me). All the best, get well soon x

[HolsBamboozledwomb]

I'm so sorry to hear that you are going through this. It really sucks! I have my lap In may next year, so I don't have experience with the aftermath. Just remember you have come this far, you are a strong ass Endo warrior and you will get through this one day at a time. I hope you feel better soon xxx

[kittykins7]

Hi Avonlea,

Sorry to hear about your work situation. That just adds to the stress doesn't it! And stress doesn't help with inflammation. And inflammation doesn't help the Endo.

It took me a while to recover from my laparoscopy a few years ago, and I suffer a bit from what I think of as nerve damage, more in my right thigh, but I do also suffer with my lower back as well.

After my laparoscopy I noticed that it was coming back again after about 6 months, as all my symptoms were starting up again.

I decided to take matters into my own hands this time and was told to read a book which I wanted to share with you. It's called. Heal Endometriosis Naturally without the use of Painkillers, Drugs or Surgery. By Wendy K Laidlaw. I believe it to be the best advice I've ever had. I often tell people who are struggling about it on here as I really don't know where I'd be without following the advice in that book, and want others to try it as well. (anyone would think I have shares in that book, or am the author as I recommend it so much 🤣)

You have to be dedicated and make changes to your lifestyle. And I'm not gunna lie, it doesn't get rid of the Endo completely. But it keeps it at bay, and massively improves your life (well it did with me).

Just having hope, and something to try yourself is great isn't it.

If you do decide to give it a go, then please do let me know how you get on with it.....there's nothing better than knowing you've helped so someone. 😊 x

[Dee_EndoUK Moderator Endometriosis UK]

Hi Avalonlea

Sorry to hear you've been having a tough time of it recently. It certainly makes it more difficult if your place of work has been unsupportive.

We do have a couple of useful resources on our website (endometriosis-uk.org), which may be of help. First of all, we have an eight-page document entitled 'Endometriosis: An employee's guide to rights at work', which covers such topics as equality and discrimination, adjustments and flexible working, and further advice.

We also have a further document about managing your endometriosis at work, which can be quite helpful. To find both documents, simply type in 'work' into the search box on the home page and click on the first link that comes up to 'resources'.

I also think it might be helpful for you to access one of our regional groups for face to face support with other endometriosis sufferers. You can find out if there's one in your area at endometriosis-uk.org/helpline

Take care and wishing you all the best x