Private Lap today- Best thing I ever did - Endometriosis UK

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Private Lap today- Best thing I ever did

Millabajack profile image
3 Replies

Hi all

I just wanted to give an insight into my laparoscopy today which I self funded privately ( not many of us have this option) but I was fortunate to be able too. I had small amount of savings.

Today I found out my troubles are not in my head, or exaggerated they we’re far worse than even they had considered.

In jan 2020 I was put on the waiting list for surgery I needed cyst removal and diagnosis for endo. Fast forward to July 2021 still no surgery and I spend 3 weeks of every month feeling rotten now , I reached my limit and can take no more, I chase up the consultant for 10th time and asked him outright how much longer ? Spring/summer 2022 if I’m lucky and if Covid is bad this winter possibly longer 😢😭, this made my decision…… I’m going private. I have money but no life or health, and without continuing to work there would be No Mortgage any way.

I had to wait nearly 7 weeks to see my chosen specialist, to be told I had endo not suspected as the NHS said, my cyst was apparently a simple 1 not according to my consultant, I was taking the wrong contraception and I had not been diagnosed with IBS EVER which apparently I should of been.

My consultant arranged for me to have another ultrasound to check size of cyst , it hadn’t grown a great deal but was in fact a endometrioma . I was also checked for deep endo too, but not present.

Fast forward to today, I had 2 endo cyst removed, only 1 had ever shown on both scans 2 years apart 😮. I of course have endometriosis, but I also had fibroids, not picked up on scans😮 and adenmyosis not picked up on scans.

I was flabbergasted I was expecting endo and 1 cyst 😮

The surgery it’s self was far better than I expected but the gas pains have been truly awful,

I’m home now and being well cared for.

I’ve had issues since I was 17 I’m now 34, I managed until 5 years ago and accepted another change of the pill but 2 n half years ago a new dr decided I had complex issues and started the referral but my NHS consultation didn’t share the same thoughts so I spent the last 20 months suffering with no end in sight.

So if your considering going private do your research and take the plunge.

Im not sure how this will go for me long term but I atleast Know im not going mad and it wasn’t normal.

Fight for your health ladies, we deserve more xx

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Millabajack
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3 Replies
sunny2408 profile image
sunny2408

Hi, I’m also recovering from a private funded lap and I am so glad I made the decision to do this aswell! I was really scared to spend so much money incase they found nothing but the relief when I woke up to hear they found endometriosis and removed it. Completely agree with you that it is worth it to get your life back. Best decision I have ever made not just for my physical health but mental health too! However it is awful we had to get as far as going private and that there are women out there who will continue to suffer because private isn’t an option for them😔 Hope you are recovering well x

Endoandfedup profile image
Endoandfedup

I feel that this is where I might be heading. My consultant told me fibroids don't cause pain at all which having done my research that's not the case. I've been told I need to go on prostap now. They said that when they did a hysteroscopy they couldn't see anything to do with fibroids but a scan has shown that up. They put the coil in in January and the progesterone has obviously fed this fibroid and have endo on top of this. I just don't know what to do it where to go. Thank you for posting though, I am going to research private care I think

Chilenita profile image
Chilenita

I'm truly sorry you have both endo and adenomyosis but I'm so happy for you that you now know and have your validation!! I'm glad that you now have a sound diagnosis and can work from there. Is there any way you can get your funding back? After all, they didn't refer you and yet it turns out you have some serious issues going on. I wish you all the best going forward, and yes, those damn gas pains! Who can forget those?

😘

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