Hi everyone, I’m new here!
After an eleven year battle with horrendous symptoms, I was diagnosed with PCOS in 2016 and received very little follow-up care. My symptoms continued, and I was put on Rigevidon in January 2019, which has helped.
Last year, I had an abnormal smear result and attended a colposcopy clinic in January 2021. As the doctor was talking to me before the procedure, he mentioned that he’d looked at my notes and ultrasound scans and thinks I was misdiagnosed with PCOS. Which was a shock.
I went back to my GP, and had another pelvic ultrasound in May 2021 which confirmed no ovarian cysts. My blood tests came back with normal hormone levels.
I’m now back to square one in terms of getting a correct diagnosis, but am finding that the gynaecology doctors I’m seeing are incredibly dismissive. If it’s not PCOS, what is it? My GP is amazing and is totally on my side, but the specialists I’ve seen are not taking me seriously. They keep saying that, because Rigevidon is improving my symptoms, there’s no point in me continuing to seek a diagnosis unless I want to have a baby (I’m quite honestly sick of this being used as the only way to validate providing women with healthcare).
Do I need to come off the pill and experience my horrendous symptoms again in order to be taken seriously? My GP says no but I don’t think I can go through another frustrating specialist appointment where my concerns are dismissed.
In my opinion, I’d like an MRI/laparoscopy to investigate for endo on my bowel. One specialist told me that Rigevidon stops the growth/function of endo, which from my own research I think is untrue. My concern is that I may currently have endo on my organs which will continue getting worse and could possibly lead to other health problems.
Would love to hear from anyone, be it with similar experiences or not. Many thanks!