Still no diagnosis :(

[becausemanson]

Hey ladies

I'm at my wits end here struggling with this everyday. I've always had painful periods since I started at 11, they got progressively worse as the years went on. Over the past year I've been experiencing pain during intercourse, reoccurring infections, constant nausea, excruciating periods, stabbing pain in pelvic area, back pain, leg pain, and headaches. Over the past month slowly I've become extremely tired everyday, pain spread to bowel area and bladder which is making me pee every hour!! Visited A&E last week because of the pain, doctors were useless and treated me like I was wasting their time. They did a urine test and showed no infections in kidneys or anywhere else I was getting pain. Basically told me to go home and put up with it. Been fobbed off by doctors and told by at least 5 that it most likely endometriosis but they don't want to do a lap because I'm too slim which adds more risk. I had a transvaginal and ultrasound and both showed my right ovary was fine but my left was hidden and seeing as that's the side I was getting pain it made no sense they didn't want to pursue it any further. I have been off work for nearly a week now and risk losing my job if I don't have any medical proof of anything wrong. I have another docs appointment in a couple of days, but I'm starting to give up any hope of being taken seriously. The pain is awful and every other symptom is agony. This is no life for a 20 year old. I cant live like this any more.

[Snad]

Sorry to read about your struggle. I think we've all been there, going forward and backward with doctors. Go back to your GP and insist to be referred to an Endometriosis centre as they suspect it can be that.

I am thin as well and I had a laparoscopic surgery without any problem. I think they are just trying to find an excuse. Don't put up with it.

Please let us know what your doctor says at your next appointment.

[becausemanson in reply to Snad]

I will let you know, hopefully it'll get sorted soon and at least I'll know what the problem is then.

[Miracle77]

You should be pushing for a lap if scan couldn't visualise your ovary especially that is the side u have pain, it's suggest it's being held down possibly with adhesions

[becausemanson in reply to Miracle77]

I have been, unfortunately even Gyno specialists have shown no interest in helping. My GP I am seeing on Tuesday though is usually very understanding and pushes for things.

[slaccie98 in reply to becausemanson]

Most medical professionals dont know or understand endometriosis. Push for a referral to the endo centre. Its not right to have all these sypmtoms. I've got a brilliant GP who is understanding and willing to help. He's the only one I go to see in the practice.

Hope you get sorted out quickly x

[winnieandwats]

Hello,

I've just had my date through for a diagnostic lap after months and months of perseverance. The way that I finally got to this stage was to go through sexual health - I went there to change my pill after the GPs got fed up with me. I would keep a diary of your pain, symptoms and the type of pain. For most Dr's just saying you have 'period pain' doesn't cut it, despite it being unlike any other pain any of us can describe! I kept going back to sexual health and they referred me to gyne. The other thing that helped me was taking my mum with me. I was much more confident to say all the things that were wrong and to push for a diagnostic lap with her to back me. I think you get to a stage where you start thinking it's all in your head!

Just don't back down.

Good luck x

[becausemanson]

Your post was very interesting and had a lot of points I will bring up with my GP today, thanks. I'm in Nuneaton in the UK.

[becausemanson]

I have had a look for specialists and there is a centre not too far from me. But seeing as Docs aren't taking it seriously would I be able to make an appointment at a specialist centre without a referral from a doctor do you think?

x