Endo taking away my career..... - Endometriosis UK

Endometriosis UK

71,796 members52,588 posts

Endo taking away my career.....

Jasmin24 profile image
10 Replies

Feeling a bit mah today, after a work meeting, which has left me abit mixed. It wasn't as positive as I would like.

I'm currently off work, recovering from many complications, a range from adverse reaction to a hormonal drug, water infection, annoying endo flare up, due to first period and a nerve problem causing weakness to right face and body.

I have recovered, but unable to do somethings like before.

I have worked in childcare as a pre-leader, in many settings for over a decade, almost 17 years. Loved the challenge the pace, and everything that came with it.

In June last year, I was made redundant. One of the causes that tipped the scale was due to endo flare ups. I managed to get another leaders job in August, loved it. The nursery knew of my condition. I fell ill and hospitalised in December. Came our in January.

Working with children is challenging, and I understand the nursery's needs someone that is capable. I will be going back to do a couple of hours a day. But will not be able to do the running around, or forest school, or and physically demanding jobs that comes with running a room.

The nursery have been understanding, but its a small private place.

I know I cannot do the job I use to do, but where do I go from here?

I am in my forties, still wanting a child, which may just remain a dream.

Has anyone been in this position?

I feel everything I worked hard for job wise, is slipping away.

I feel lost and unsure of what to do. I have worked so hard to get on the property ladder, and feel I will lose everything I have worked hard for.

Any advice would be grateful 🙏

Written by
Jasmin24 profile image
Jasmin24
To view profiles and participate in discussions please or .
Read more about...
10 Replies
Cailleach profile image
Cailleach

You seem to have such a lot going on at the moment and understandably this is bringing up a lot of fears for the future. You may not be back to full recovery yet from your recent issues, so you need to see what your “new normal” is. I think you also need to see your gynae as soon as is possible to discuss what your future options are for treatment and how this will affect what you will be able to do work wise in the future. Of course treatments may well impact on the possibility of you having a child in the future. With all this going on maybe counselling might help you talk in a safe space about all of it.

I was thinking Disability Discrimination Act about your work situation, but in a small private nursery there may not be much they can do in the way of adjustments.

Long term there might be jobs you can do that use your skills without being as hands on, that would be worth looking into.

I really wish you well xx

Jasmin24 profile image
Jasmin24 in reply to Cailleach

Thanks CailleachYou just get a moment of, what do I now!

I'm looking at other ways to up skill now. I'm just waiting for a date for my op, which might happen at the end of May.

I suppose we can't give up.

Wish you all the best!

Moon_maiden profile image
Moon_maiden

HiWhat does your GP say, they can push for you as well.

Re property, you can get the mortgage interest paid, once you sell the property they’d want to be paid back, but that could be years. Most mortgage lenders are happy if the interest is paid. May help reduce the stress in one area.

I totally get where you are coming from, I’m doing a few hours and on ESA, you’re allowed to do some work. I should have been ok by now, but now have to, potentially, go through another op.

There are lots of other jobs you could look at, you’ll have developed other skills throughout your jobs. Write a CV, just for you, and things might get a bit clearer for options

Jasmin24 profile image
Jasmin24 in reply to Moon_maiden

Thanks Moon_maidenThink I had a moment.....it has made me realise I cannot do a physically demanding job and I do need to see what skills I have gained.

I will return to work on a phase return, but now speaking to the specialist, the op might possibly go ahead end of May, so just thinking how will that leave me with ssp.

I know its a complex op, and I'm not great with recovery either. But I'll be glad once it's done.

I think sometimes you just need to sound it out to others to when you come to a blank.

Family, partners and friends will always be there, but they don't really understand fully, how it effects you.

I do hope your op goes well.

I think you wrote in your previous post about letter of complaints. I hope they take on board your experience.

I'm still waiting from a response from the complaint I made to the GP, so I'm waiting for the reply, to then continue the complaint I'm making towards the gynae doctor.

All the best and thank you again!

Moon_maiden profile image
Moon_maiden in reply to Jasmin24

You sound a bit better at least in thought 🙂 this can be a great sounding board. It’s still hard and the concerns get a bit overwhelming. A phased return is a good idea, see what else the workplace can offer, maybe start with doing story time, kids love that, and making things. I don’t know if I’ll need another yet or they’ll come up with a magic wand 🤣

I’ve passed complaint to CQC, but it’s one of those things that I might not hear.

Unfortunately the GP didn’t put my opt out of sharing info between healthcare areas such as the hospital, so all their stress crap through 2018/9, will have been seen now. I opted out in 2018. Dec 19 was when I went private to gynae to start with a clean slate and no referral. I had suspicions last year but had confirmation from dietician last week.

How are you feeling at the moment?

Jasmin24 profile image
Jasmin24 in reply to Moon_maiden

Maybe it's worth trying your MP, who would forward it.Last time I wrote a Complaint, I forwarded my concerns to my MP. If anything, your still highlighting your experience.

Maybe forwarded it to your endo support group, who yet again, send it to the right person.

I'm still waiting for GP response, so I can then build my case. Haha...I mean business 🤣

Has for children, if I leave my walking stick, I would not see it again!

All the best, let me know how you get on we everything!

Moon_maiden profile image
Moon_maiden in reply to Jasmin24

Surgery swears blind they opted me out. I’ll ask the pain consultant what he’s seen, he’s been ok through this.I’ve thought about MP, so might try this route if I don’t get a response to my letter I handed in at the hospital yesterday.

The medical profession really pick on the wrong people to mess with 😂

Let me know how you go as well 🙂

For all we know might be up against the same people 😂

Jasmin24 profile image
Jasmin24 in reply to Moon_maiden

They defo picked on the wrong people! 🤣, but just any avenue, you come this further, don't back down.I'm gonna do a bit of ring and chasing, once I crawl out of bed. Just feel drained today.

Anyways keep in touch...take care x

Moon_maiden profile image
Moon_maiden in reply to Jasmin24

Hope you aren’t feeling too bad today. Let me know how you get on 🙂

Jasmin24 profile image
Jasmin24 in reply to Moon_maiden

The pain is now going up into my ribs....It feels odd.But yes, I'll keep you updated dated 🙂

Not what you're looking for?

You may also like...

Career impact of endo

years working really hard trying to get my career back on track after a relocation, today endo...

How to navigate your career with endo.

him about how I'm feeling. I don't say much about my endo and he doesn't get how hard it is and how...

Has endo affected your career?

to return to work after being on long term sickness since February. I have stage 4 endo which has...

Career women, juggling endo and a career!?

am a Senior Manager with a busy stressful job. I often work 10 hour days without a break and still...

My endo management kit

anymore and 2 years ago I left work. In these two years I've tried everything I could think of to...