Has anyone else experienced shortness of breath or high anxiety on prostap?

[Nat140281]

I’ve been on prostap on and off since 2014.

My latest set of 3 monthly injections started in June 2020, they were great, stopped all pain and I was happy. Fast forward to December 2020... and the HRT I was taking alongside the prostap is no longer available due to COVID-19 so I was given Estrogel pump gel and utrogestan tablets. I had my 3rd prostap injection on December 18th and started my new HRT the same day. By December 28th I started with severe anxiety and since then I have developed many symptoms including palpitations, shortness of breath and aches and pains in my back, tight chest and globus sensation in my throat. All of which come and go many times throughout the day.

I don’t feel overly anxious anymore (like at Christmas) but my GP thinks it’s caused by the long term effects prostap and menopause with anxiety on top. Every symptom I get I Google it and worry more that I’ve got a serious problem with my heart. My GP ran some bloods, listened to my heart and did an ecg which all came back normal. He’s given me some propranolol for Anxiety and told me to try it for two weeks and get back to him and if it doesn’t help he’ll go down another route.

I’m not going to have any more prostap injections and will be cancelling my next appointment in March in the hope once it’s out of my system I will start to feel better and my symptoms especially the shortness of breath will stop.

Has anyone else experienced shortness of breath or severe anxiety with prostap?

[Anna_EndoUK Moderator]

YES! I get a tight chest, breathlessness and tension headaches pretty frequently, even when I don't feel particularly stressed out or anxious. I'm keeping a journal at the minute to see if these symptoms coincide with my prostap injections - I've got a feeling that they do. Keep us up to date with what your GP recommends and I hope you're feeling better soon! xx

[Nat140281 in reply to Anna_EndoUK]

Thank you for your reply, I’m sorry you get this too. I really want a hysterectomy but my gyne won’t let me as I’m too young apparently. My GP is supportive of my de soon to ask for a hysterectomy so I’m hoping he’ll be able to put pressure on them for me too.

[EmRob0]

Sorry to hear you’re feeling rubbish. I’ve had an awful time on it and won’t be having it again. Had a severe allergic reaction requiring hospital treatment. Have also had headaches/ palpitations/ high blood pressure ( no problems before) and feel as though my heart is pounding especially in my neck at times. Joint pains that are quite debilitating too. I hope you feel better soon, any questions just ask x

[EmRob0]

Sorry I meant to add - shortness of breath too, and waking in the night with it x

[Beki2244]

hey hun.. yes i have i had my prostap in January and i kept feeling this excited feeling in my chest as if i was looking forward to something... is spoke to my consultant about it as it started when i had the injection and he laughed and said yeah that will be the heart palpitations.. i also feel very overwhelmed by the smallest of things.. like its to much to take i cant deal with the normal stresses of life... and some days the hot flushes are back to back.. as much as these are an inconvenience i much prefer this than the pain and bleeding and horrible feelings a week before being due on... saying that he's going to prescribe me HRT on Monday but i hope your doing well on it and its doing what its meant to do and help with xx

[Kinzy1979]

I know this post is old but I know I came searching for answers on the internet to all the horrible side effects I have experienced with Prostap (once a month) I've had it for three consecutive months now. I thought I was experiencing side effects, facial tingling/jaw pain, headaches, vision changes, feeling extremely anxious where I was to a point I thought everything was going to get me. Felt like I was going mad, until I researched this drug. So many men/women have been affected by it. Its something that had I been more informed beforehand I would have definitely not allowed into my system. I have large uterine fibroids and they where trying to shrink them before surgery.

I have developed severely high BP which had me in the A&E, facial pain that comes and goes. Headaches that are unbelievably bad. My liver enzymes are messed up as well as my blood lipids. All I can say as although I wasn't the fittest person I was in no way in this shape before the Prostap injections. I refused the fourth and am now hoping that over the months I will return to some semblance of normality. I had an ECG at the A&E which showed QT Prolongation, and via my GP had another ECG which showed an enlargment on the left side of my heart am now waiting on an echocardiography. I have palpitations which at first I put down to the horrible anxiety. I pretty much don't get much sleep (thought this was the cause of the palpitations) due to the insomnia brought on by the drug and the frequent need to get up through the night to go the toilet. Its been a very stressful and upsetting few months. I am due to go in for an open abdominal hysterectomy soon. Hopefully its a resolution to all this. I would never have prostap again. Its made my life so hard for the past few months.

[Nat140281]

hi

Thanks for your response. I’m no longer receiving the prostap I stopped almost 2 years ago but unfortunately it’s left me with very bad anxiety and all the symptoms that go with it and I’m still taking anxiety medication daily. I’m on a waiting list for a total hysterectomy and bowel surgery to remove the endo from my bowels I’ve been waiting 2 years. 😫

I hope all your issues are resolved with a hysterectomy. Good luck with everything x