Hi all,
I have recently been diagnosed with a 9cm endometrioma. At least, that is what they think it is. I am atypical for several reasons:
1. The endometrioma is not attached to or associated with my ovaries. It is attached to the uterine fundus.
2. My symptoms don’t match the diagnosis. I have very heavy near-constant bleeding and anaemia, but no pain at all.
3. I have a history of fibroids AND PCOS. According to my consultant two of the three is common, but all three together is pretty rare?
My consultant wasn’t sure what to do with me and, after making sure it’s not cancer, sent my case for review by the endo MDT at a specialist endo centre. I am taking Zoladex in the meantime. I have been told to wait until I hear back from them, and to expect to hear within 12 weeks. Is this 12 weeks realistic? I hear of people waiting much longer than that, but I feel like I have been waiting an age with fairly debilitating bleeding/anaemia already and just want this sorted already.
What will happen when I do hear back? How long is it likely to be before I receive any treatment? Is there anything I can do to speed up the process?