Is this Endo?

[MrsRose23]

I'm looking for support. I've been told 6 yrs ago I might have endo- only diagnosis was through going on the injection and all symptoms improving.

I didn't stay on deppo long as it increased symptoms of depression and anxiety.

Forward a few years and I was symptom free, healthy pregnancy... now 3yrs on from the birth I feel like slowly symptoms have been building each month/year.

Now, I'm struggling with pelvic pain from ovulation through to my period. It's all one sided. Pain in my flank, same side as pelvic pain, feels like what would be a kidney infection, never is, pelvic pain that is a dull ache, stabbing, painful twinge, cramping. This also affects my lower back and into the tops of my legs. Around ovulation it's like a burning sensation, discomfort in my stomach. Spotting. Rectal bleeding. Stabbing pains in rectum. Colic like pain in stomach, sometimes I can't sit down without it being agony. Same as passing a bowel movement. All these things are at their worse from ovation through to my period. Period cycles also irregular. No heavy bleeding but often lots of small clots or short bleeds of just 3-4 days.

I'm finding the pain this cycle awful. Spent the weekend in bed. Hot water bottle and pain killers. Pain van subside but then worsen as I move around.

I'm waiting for a call back from gp this morning to rule out a water infection.

I feel absolutely drained. In constant pain and worried.

Does this sound like endo?

Previously I've been prescribed cerazette which I've not taken, but would it help? Would it help eliminate some symptoms?

Should I be pushing for a referral? Scan? MRI? I'm reading such conflicting advice everywhere!

[Annabel3682]

Hey

I have all those symptoms and problems. So I know sort of how you feel. I’m really struggling with daily life work and social. I find heat really helps. Staying off alcohol and watching my diet also no caffeine. I do smoke though. I have codine but I’m trying to avoid it until I’m in agony. Pester your gp to try and find a pain relief that your body responds to well! I hope that helps. I’m thinking of getting a tens machine to use every so often. I feel so tired and trying to find something that gives me energy to get me through my day. I can let you know how I get on soon. Stay safe and I hope you feel better soon 😊

[MrsRose23 in reply to Annabel3682]

Thank you so much for replying. I've been sat here for hours trying to find relief from the pain. I've attempted a few times to get up and do stuff but within a few minutes the pain shoots through me and I have to to sit down and sit still again. The only relief temporarily at the moment is a hot water bottle!

I've written a list of stuff to relay to the GP as I can't believe how incapable I have been the past few days! From pain!

Please do let me know how you get on, it's comforting to hear other people's experiences. I will look at dietary changes too. I'd do anything to escape this pain!

[Christie-elli]

Hi I know this post is old and hopefully you’ve had some answers but I’ve just come across it in search for similar cases to mine and maybe this will help if you don’t have answers. I have stage 4 Endo and it’s on my bowel and wrapped around my ureter (which is the tube connecting your kidney to your bladder) so my pain is a throbbing ache/sometimes stabbing in my kidney. With the Endo wrapped around the ureter it causes my kidney to swell which causes the pain.