Endo and prostap injections. : Hi everyone... - Endometriosis UK

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Endo and prostap injections.

Priceyy95 profile image
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Hi everyone.

First time writing on here so hoping I can get some advice.

I had a lap back in March 2018 and after was placed on nasal spray version of prostap injections. Then after 6 months moved to the injections. I have stopped the injections in February this year. So totaling nearly 2 years on the medication.

It's now been 8 months since my last injection and I still haven't had a period. My boobs are incredibly sore and I have really really bad pains and cramps.

So far, advice from the consultant or GP has been useful. The consultant decided to discharge me, not knowing anything else they could do as I was still experiencing a lot of pain. I'm waiting for my GP to refer me back. But I just seem to be stuck in a hole with no help.

I'm only 25 and the injections have given me osteoarthritis and I had really bad menopausal symptoms. I'm just spending everyday in pain. I was prescribed oramorph but it doesn't help with the pain and it's hard to regulate taking as I work nights and have to stay awake.

Sorry for the long post. Any advice would be very much appreciated.

Thank you!☺️

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AngelMumma1711 profile image
AngelMumma1711

Sorry to hear that you're having such a hard time, and so young too 😞 I had heavy, painful periods from age 11, had all sorts of pills potions and treatments over the years. I had the Mirena coil fitted after having my first child, but that was a nightmare as the endometrial tissue grew so thickly around it that it became embedded and had to be surgically removed. After my second child I had an endometrial ablation, which worked wonders for a few years. But then the pain returned with a vengeance! I was on zapain, tramadol, amitriptyline and oramorph. But as I work during the day I could only take the oramorph in the evening. If you do shifts it will be a nightmare to get into a routine with it I'm afraid. And sadly, for me, nothing got rid of the pain, it just made me feel "distanced" from it, and more relaxed. Ultimately the only thing that has been a success was a full hysterectomy aged 39. Not an option for you at your stage of life, though I'd imagine. I did find that a warm wheatbag or hot water bottle helped, and a long soak in the bath or a hot tub was very soothing too. If you can afford a few hundred pounds, it's generally totally worth having a private consultation with a gynaecologist. They can refer you back to the NHS for ongoing treatment, but it skips the long wait to see someone to get the ball rolling.

Good luck xx

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