hello fellow Endo patients. Is anyone else stuck in the middle of the ridiculous scenario of not being able to have their 3rd Prostap injection.
I was told by Preston Gynae it had to be them,they cancelled the appointment the day before I was due to attend are now refusing and stating my GP should be doing it as part of the CCG agreement. GP has refused saying its not them and should be Preston Gynae,in the meantime I'm doing all the ringing round and have started my periods again with Endo pain as it has taken so long and still got to wait until August. I do hope they don't say no as I might very well explode in frustration ! And in the week they announce all new doctors willbe trained in women's health, inc Endo care, what about existing GPs?sorry for the rant but it so ridiculous
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Did gynaecology write to your GP ?Are you having add back, hrt that they want your doc to continue to perscribe?I would speak with your gynaecologist secretary and ask them to sort ? If you've been seen by them they should be sorting it for you.
I'm due to start prostap 3 injections next month and having tibolone hrt to take with it. My gyno wrote to my gp asking them to continue my hrt after they had given me the first prescription.
Thankyou PurpleChase39 the problem is Gynae did write to GP only asking them to provide 2nd injection and now Gynae won't provide another appointment and GP is refusing. So fed up that I have to do all the ringing around and complaining and they won't talk to each other
It is a nightmare how you constantly have to chase up everything 😞 as if you dont have enough on your plate. Really your gynaecologist should carry on giving you the injections if they gave you the first one ?
I hope i dont have this trouble with mine. I was supposed to start this month and that's when i contacted my gynaecology secretary to ask when it is ? She got back to me saying 3 months after your first one, which i told her thats what im ringing, to find out when is my first one is ? as you haven't sent me any appointments? 🤦♀️ my gynaecologist told me in June that i would start July.
Hello, how frustrating for you! My gp has always done mine after a letter from my gynae. I'm on my second course of 6 injections. If you originally were having them done by gynae then they really should be continuing them or write to you gp to get them to do it. I think it's time to get PALS involved. If you look at your hospital website there should be info on how to contact PALS and explain to them what's going on x
Preston prescribed prostap for me until I have urgent which could be 12-18 months. Not had any problem with my Gp doing it.Preston should have put it in a letter though. Gp can’t give it without Preston saying you need it.
I’d contact pals if u aren’t getting anywhere with Preston. They can sort it for you without all the telephone calls.
I've had this issue last few weeks chasing, (lead consultant was off with covid) they've finally sent a letter to GP, so just waiting for them to get it in then another stab for me, oh the joys. Coincidentally I found out that the team completing my surgery dual gynae/uro/Colo only get 1 day a month for the complex surgeries therefore urgent (I'm about 14th in the queue) is around a 12 month wait 😭
Thanks, I've been in the urgent list since last November, had an MRI which showed how bad inside was so I was put into the complex list, unfortunately I've got full thickness 3 inch bowel/rectum involvement and that's what they could see on the scan from December, so hoping the prostap as at least halted any progression xx hope you are able get your jab sorted soon for some relief xx
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