Endo flare : I need help!! I had my little... - Endometriosis UK

Endometriosis UK

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Endo flare

SarahG87 profile image
6 Replies

I need help!! I had my little girl 7 months ago after trying for years and being told I would be unlikely to carry the whole way through. I was diagnosed 7 years ago with stage 4 endo and was chemical put into the menopause for 6 moths. This was a great success after several failed surgeries and tablets. My problem is now I'm having a major flare up I've been bleeding since February had 2 weeks with no bleed then started again im on day 35. Drs won't see me and said just to stop all meds but I'm so tired all the time and starting to get dizzy spells can anyone suggest what I should do or were I go to get help.

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SarahG87 profile image
SarahG87
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6 Replies
Linley profile image
Linley

Good heavens, that's terrible your GP not seeing you. I can only suggest the following.

1. Call the Endometriosis UK helpline and get some expert advice.

2. Get an appointment with your local pharmacist ask for their advice, they maybe your way in to your GP.

Good luck🍀🍀and let us know how you get on

SarahG87 profile image
SarahG87 in reply to Linley

Thanks didn't know about the helpline. I will try them. I have already spoke to my local pharmacist but they just said to keep ringing the gp. Really starting to get me down now. My health visitor even rang my practice on my behalf but they said they can't see face to face patients at the min with covid

Linley profile image
Linley in reply to SarahG87

So u should be able to get a GP telephone appointment, get your health visitor to take your BP, check weight etc before the appointment. Then write down all your questions and symptoms so you leave nothing out. Please don't think I am being patronising but a friend had a phone consultation and forgot to ask a pertinent question.

SarahG87 profile image
SarahG87 in reply to Linley

Thanks so much for ur help and advice I rang my gp again and am now waiting to get my bloods done, a scan and have been referred back to gyne again. Have been put back on the mini pill and that has helped stop the bleeding so far xx

Linley profile image
Linley in reply to SarahG87

👍🌹

Rjb_88 profile image
Rjb_88

I started getting bad flare ups again around the same time as you, 6/7 months after having my son. I’ve now been bleeding on and off for 8 weeks which is madness.. doctor has given me northisterone, could you ask for that? It seems to be helping me. I’ve then called my consultant and asked for an examination and a smear as it just doesn’t feel right at the moment.

Also get some spatone sachets, it’s iron water and a lot more gentle than tablets.

Are you under a consultant still for endo? X

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