Endometriosis on lungs

[Marisa97]

Heyy, I have recently been told that my endometriosis has spread to my lungs via MRI scan. Anyone else have this? What happened? What surgery are my going to expect?

[plotments]

Just wondering what your symptoms are.....I've been trying to research this without much luck but I feel like my endo is moving up my body ...if that makes sense

[Marisa97 in reply to plotments]

Hey. The symptoms I have is constant sharp pain from my pelvis up to under my ribs. My endo is also on my large intestine. I have 2 more cysts on each ovary and few benign lumps. It feels like a massive weight is pulling all of my organs down. Have sharp pain in my lower back also where my kidneys are. I asked my Dr for an MRI scan and had it two weeks after I asked. It is worth asking for it.

[plotments in reply to Marisa97]

That sounds very familiar......I'm currently waiting to see bowel surgeon as large bowel is being pulled and endo causing probs but sharp and heavy from pelvis to ribs only time I get mild relief is first three days of period but then Im dealing with period pain and a cough which goes once my period has ended.

I hope you find some info soon.....nothing worse than not knowing what's going to happen

take care

[Marisa97 in reply to plotments]

Thank you. I hope everything goes well with you too and you find all the help you need.

Good luck and take care xxx

[Bespp in reply to plotments]

I get that cough on my periods which I am awaiting to get to the bottom of it with my doctor. I suspect the same thing endo in diaphragm/lungs. There was another interesting posy here a few weeks back where someone had collapsed lungs because of endo there.

[plotments in reply to Bespp]

Hi yes I've heard a few people mention collapsed lung I think that's how a lot have been diagnosed.

Its such a tricky disease to confirm as whatever it attaches to it it causes probs .know a few people had gallbladder removed then found it was endo on gall bladder causing probs.....same if its on bowel IBS symptoms.

Have you been diagnosed with endo?

[Bespp in reply to plotments]

Yes severe stage 4 all over my pelvic floor and bowls. Following up on the the lung side now. Not any under medication as trying to manage pain as naturally as I can . The struggle is real though as we all know.

[plotments in reply to Bespp]

Hats off to you.....no pain relief I cant even get up till my meds are in me. after my first lap in 2017 I tried a year on herbal treatment...Agnus castus.....it helped with my periods but not any of the other endo probs I was having.

Its a horrid condition to be living with especially when you constantly battle to find something that works

take care