Private surgery costs?

[lw95]

Hi, I have been suffering for years with endometriosis pains and last year had a diagnostic laparoscopy. I have been on the NHS waiting list for actual treatment for this for over a year now and before covid 19 was sill a few months off being treated. I was looking into private facilities and I was wondering if anyone has gone private to be treated, if so what kind of prices should I expect? I am getting frustrated with the wait and the pain has been getting worse recently that its starting to effect my mental health a lot more.

[Moon_maiden]

All in with consultations before about £3500. The actual op was just under £3000 and included overnight stay.

The op included Helica treatment

[Hidden]

My excision surgery cost £11000 but I did have extensive endo and large cysts! Luckily my parents paid otherwise I dont know where I would be at the moment! x

[Bubble_by]

Think mine was about £6000 with overnight stay in a (London) hospital. All the drugs & pre admission tests were included in this. My mum was kind enough to pay for it.

[Bikergal900]

I looked into going private and most came out at about £3500 just for consultation and laparoscopy. If you have treatment and endo tissue removed it was around £5500. Unfortunately the private clinics in my area aren't doing this surgery due to covid.

[JOSANDY40]

Are you attending a Endometriosis clinic?

As there aren't long waiting lists!

[lw95 in reply to JOSANDY40]

Sorry if I’m being ignorant, I’ve never heard of an endometriosis clinic, what is it? I live in Scotland so would you know if that’s something I can get access to here?

[BrightLights88 in reply to lw95]

you have to search on the site, Scotland might not be many choices but there might be one but a little too far out but its better than being in misery.

Once you are under their care you can start to enjoy life than suffer in pain. x

[Violet159 in reply to lw95]

Wee word of warning about this re: waiting times. I'm with the endometriosis clinic in Edinburgh and it took over 4 months to get a consultation and there was a 6 month wait for surgery (pre-Covid, the wait will now be much longer). I think the waiting times vary from hospital to hospital so be aware of that and do your research, an endo specialist clinic does not always have short waiting times I'm afraid! As far as I understand the scottish system, you need to be referred to the endometriosis clinics by a general gynaecologist - that's what I was told anyway! Whereas I think in England a GP can refer you straight there. I believe there are clinics in Edinburgh, Glasgow and Aberdeen at least and there might be others, you can find the list on the BSGE website.

Good luck xxx

[Afrohair]

Quote on a top surgeon 5,500 immediately seen to within a week or 2

[BrightLights88]

Hi, Firstly I'm sorry that you having to wait so long I know the pain I waited 11 months in agony, 9 hospital admission, 1 cardiac arrest which then made me discharge myself from gynae and go to a endo specialist,this was done via searching on the BSGE site and finding the 2 closest ones I then got my gp to see which one had consultation available and got given a date for my first consultation, had a mri, results and then booked in for surgery all within 3 months. Since Aug 2019 I have been endo free.

As for private, you will not get the same after care treatment you will get the surgery done and then discharged, any issues you have to be referred to a gynae which then could be a little frustrating as that gynae would have had done your surgery etc.

What you should do is search on the bsge site find your nearest endo centre, ask your gp to refer you to that centre. Hopefully they are still taking on consultation at this time I am due for my 6months follow up next month and as far as I know my endo centre is still seeing me.

Good Luck. Keep us posted. x

[Hopeful112 in reply to BrightLights88]

Hi I know this was a long time ago but I am hoping you see this ☺️ i am in severe pain and need a good endometriosis specialist to excise my endo. If you don't mind me asking who did your surgery?I hope your still feeling good 🌹

[BrightLights88 in reply to Hopeful112]

Hi, Long time it maybe, (5yrs) but I still remember first being diagnosed with it like it was yesterday. I am till this day with Homerton Endometriosis Clinic and my consultant/surgeon is Mr Barnick. You can look into the work he has done on the BSGE site. Mr Barnick till now has been amazing. I have had one laparoscopy by him in 2019 and since been endo pain free. I see regularly with 6months checkup and MRI..If your endo pain has got to the point you are using codeine or cocodamol then you really need to get your endo removed otherwise you will not feel any different. Speak with your gp and get them to refer you to endo clinic. Do take 2 other options, there is one in London Bridge as a back up. Again do you research and see what's best for you. Tell your gp to refer you they will try and fob you off by saying there is a long waiting list upto a yr etc but say that's fine I will see through it. GP don't like doing referral I have no reason why. Any advice feel free to message me. x

[Hopeful112 in reply to BrightLights88]

Thank you so much for replying 🌹🌹I know we are strangers but I felt so happy hearing you are doing so well. Endo is a truly horrid disease.I will look into the docs u have mentioned.

I have quite bad endometriosis. Pouch of douglas, bowel, ovary adhered to uterus & I'm guessing alot more but won't know until I see someone again. You say u are feeling good 5 years on. Did you have alot of excision or did you have mild disease and that's why your outcome has been so poisitve. I hope you don't mind me asking.

Thank you once again 🌹

[BrightLights88 in reply to Hopeful112]

I was diagnosed with Stage 4 endo. I had also had ovarian cyst in one of my ovary which large and kept growing everytime I had a endo flareup. The pain was horrendous I had 14 hospital admission between August 2018-April 2019.

I'm disappointed that I allowed Whipp Cross Hospital Gynae make me wait this long for surgery. Sadly in April 2019 I had another flare up went into Whipps Cross A&E and they accidentally overdosed me in morphine which caused me to have a mini cardiac arrest. After this event I did my research and discharged myself from Whipps Cross and went to Homerton.

I still have very mild endo flare up here and there but nothing like when I had endo inside me. I am not on any pain relief I only use a hot water bottle. I am under Homerton endo clinic to keep an eye on me and check that endo hasn't grown up else where. But I always say to get this far you need to remove the disease in order to be able to build your strength up.

I used to feel helpless thinking this is life, always in pain.. but then I took up some telephone counselling and that helped my emotions and physical well-being.

I have the mirena coil fitted last yr to help me with my flare up since I had it I havw not had any horrendous flare up. Just the odd back pain which I can deal with.

It's OK, I am happy to know If I can give advice or share my experience

I know every lady has different experiences with endo what might work for me such as the coil may not work for another, but at least you know what sort of options and treatment there are.

x

[Hopeful112 in reply to BrightLights88]

Thank you for all the info.I really appreciate your help. Wishing you many many years of good health and lots of happiness. 🙏

Take care

[BrightLights88 in reply to Hopeful112]

Thank you. I wish the same to you. It will get better. I'm here if you need to ask anything else. x