so finally after being back and forth and seeing a private doctors I have finally got answers I have now got 3 cysts in my left ovary and endometriosis around my body including my bowels and bladder. Ive been in so much pain and felt like nothing was getting taken seriously until I seen a private doctor now things are starting to get sorted! I have a pre operation assessment then I'm have a laparoscopy and the endometriosis burnt out which will give a good chance of getting pregnant after! just wanted a few questions answered as I'm panicking a bit:
does anyone else have bowel problems I'm in soo much pain in my stomach and my bum I cant go to the toilet even though I need to?
I'm really scared about the surgery has anyone been through it? how long does it take to recover? as I start my new job this month and worried it might affect it :/
if anyone wants a chat I'm not an expert on endometriosis but I know exactly what your going through and its not nice being alone always here anyone wants someone to talk to.
Thank you
Paige :)(
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I have bowel issues from having deep endo/ scaring.
My recovery from having deep stage 4 endo removal was roughly three weeks but mentally took me longer as I was constantly tired. The bowel pain instantly stopped though when the op was done which was great as, pooping what felt like shards of glass *sorry* was not fun everyday, then the kidney cramps to go with it *shudder* You'll be so glad when you've had the operation done when you can do the loo without so much pain. x
thank you for replying Lovisa and sorry to hear you had all that. I'm glad it went away as I keep feeling the same and feel like theres no end to it but now hearing you say that has made me feel a bit more positive. I feel constantly tired now I cant keep my eyes open just cant wait to have surgery done as its all getting too much xx
It depends how much the endo has affected your bowel I just had it on ovaries so 2 weeks I had off work but yours could be longer and depends on what job you will be doing. Good luck with everything x
Hiya I'm very similar, all bowel pains i get, going in for laparoscopy on Wednesday, not sure if they plan to do anything other than look as he said if it's on my bowel he can't touch it x
Hi, I have awful pain with bowel movements it scares me to even go most of the times and I have to bite something to stop me screaming! Have been diagnosed with stage 3 endo via laparascopy and I'm so glad I had it done. Of course it was uncomfortable for around 7-10 days however not as bad as I imagined, I appreciate everyone is different however hope you have a easy(ish) process like I did! Due to have an excision lap within the next few months also. X
thank you for your reply. sorry to hear that its not a nice thing to go through I feel the exactly the same feel like I can scream and cry of how much pain it causes I hope so feel soo worried but having a few positives reply's makes me feel abit at ease. I hope it all goes well for you xx
Hi, I had horrible pain in my bowls & I was diagnosed with stage 4 endometriosisin from first laparoscopy in February of 2014. I have a large blood filled cysts along with left ovary & fallopian tubes removed alone with being diagnosed with Endo. After first laparoscopy I felt great for about a year when all the pain started coming back and had become out of control.
I recently had a laparoscopy hysterectomy last week. June 27-2017. Nine days later, I am feeling great! This time I have radiation to shrink large mass on right ovary one month before laparoscopy prcedure. Along with mass I had right ovary, fallopian tube, cervix, uterus, "most endometriosis" along with my appendix. Appendix was removed due to being inflamed!
I am pretty sure you have to have laparoscopy in order to know for sure if you truly have endo. They can't stage endo with a sonagram "they can only detected Soundwave." I am confident that everything will go good for you. Please give us an update once you are threw with surgery. Best of luck!
sorry to hear sounds like you've been through hell hopefully everything will go good for you now ah okay I didn't know that feels like Ive learnt a lot being on this site and have given me hope! thank you and I will let you know xx
I'd my first lap last may. And thought I felt great after 2 weeks so went back to work after 3. Then needed up having to take more time off again because I got tired so quickly. Had my second lap yesterday and this time I'm going to take 6 weeks at least. To give myself enough time to fully recover.
But it all depends on urself and how much movement is involved wit ur job.
thank you for your reply ...I feel awful now constantly feeling tired cant keep my eyes open but hoping having surgery done will make me feel better. I'm going to be working with elderly so will be a quit a bit of movement. feel gutted as I've only just got the job and now all this stress and having to have time off hopefully wont take too long to recover xx
Remember your health has to come first. And if your not fully fit you'll be putting the people you work with at risk.
Take the time and recover fully. Hopefully.it helps reduce your pain and then in turn your tiredness. Mine was good for a while after my first but it wasn't all gone. Hopefully it's all gone this time round.
Also forgot to say sleep sitting up right for a few days after to help with the gas pains. And take peppermint oil pills. The ones people use for ibs. Helps ease the gas pain.
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I hope so feel soo worried but having a few positives reply's makes me feel abit at ease. I hope it all goes well for you xx
ah okay I didn't know that feels like Ive learnt a lot being on this site and have given me hope! thank you and I will let you know xx
Laparoscopic deep excision surgery
Persisting symptoms after excision surgery??!
MRI After laparoscopic surgery.
Mid diagnosis
