Lap confirmed Endo and what appears to be cyclical hand pain?

[fedupwithendo]

Hi all,

Long time since I have posted but a little baffled by my latest symptoms and looking to see if anyone can relate to me.

Diagnosed with stage 3 endo in 2009 at 24. Have been on prostap which helped many years ago. I am on 20mg MST BD and oramorph for breakthrough pain. This is a massive step down as I used to be on 130mg MST BD and oramorph. I have changed my lifestyle and diet which has helped me massively with coping but has never eradicated things completely. I have long term depression diagnosed in 2010 and any contraception with hormones in makes me suicidal so I have the copper coil which has settled after about a year and is manageable.

My biggest issue despite the usual fatigue and battling with a new GP with pain relief (!) is pain in other areas of my body that I wouldn't correlate to endo if it didnt appear to be cyclical. I started getting carpel tunnel type pain in both hands but mainly my right hand. I bought a wrist brace and it eased off. Then what do you know, the week before my period it comes back!

I am wondering if anyone else has experienced anything like this! I get a pain in my back at the same time every month which I have assumed is endo related, but my hands I am confused by. I was wondering if its a surge in hormones?

If anyone can relate I would love to hear from you.

I hope you're all keeping well.

Fedupwithendo xx

[Albeon]

Yes! In fact the first symptom I got was hand and then full arm and shoulder pain for years and years before my endo related symptoms even started. I'm not 100% sure if they're related but I suspect they are, as endo can migrate and grow in the diaphragm and irritate nearby nerves which affect the arm. Also, anything bad affecting the fallopian tubes can cause shoulder pain which can also cause symptoms in the arm. It's hard to draw conclusions but it's good to examine patterns when you see them especially in cyclical things. Could be that the inflammation caused by endo is worsening a problem in other areas too.

[fedupwithendo in reply to Albeon]

Albeon, thankyou so much for your reply to me.

I will keep a log and a close eye on it. I know I have endo on my left ovary ans ureters. I had my last lap about 4 years ago and this may sound silly, but I just couldn't face being poked and prodded anymore, so I have kept on top of things with pain releif and a healthy lifestyle (most of the time).

I'm sure like many, depression is a big factor into me not wanting anymore intervention too. I feel like I'm 'okay' at the moment and can manage. I know there will be a time that may change.

I think my rambling point was, that it may well be on my fallopian tube and I also had my gallbladder removed and continue to get cyclical pain inside and one spot on my back.

I am just so glad I have someone who can relate. I was so confused!

Thanks again, much love to you.

Fedupwithendo