Feeling low is an understatement, big moa... - Endometriosis UK

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Feeling low is an understatement, big moan time sorry

Jltdance profile image
5 Replies

So fed up of this endometriosis! I feel like it’s killing my insides. I don’t know how I get up in the morning or make it through the day! I wish someone could understand the daily struggle I have to go through. I just want to curl up in a ball and die. My life feels pointless sometimes but I love life that much I enjoy sitting down relaxing and going through the motions. I don’t mind being in pain I can deal with that most of the time. But all I want is my energy back and for it not to be a struggle to do the house work or go to work. I hit more low points than high is this fair!? Just feel like am going round in circles, I can’t even do the food shop or see my friends sometimes life can very much suck even tho I am grateful for lots of things but since this horrible disease has cut off my life support which is dance, I have never felt so low in my life! Hate this can’t find anything positive about having this horrible thing.

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Jltdance profile image
Jltdance
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Ludmin profile image
Ludmin

I feel exactly the same right now :( Just want it to be over, to have a normal day, when I'm not in pain and can make plans with family and friends... I want to be myself not this crawling on the floor mess I'm now.

Let's hope that it is always darkest before the dawn and from this point it will get better <3

Afrohair profile image
Afrohair

Snap!exactly how I feel can’t even do housework it sounds silly but I didn’t mind doing housework now I can’t do it!shopping is a nightmare I even have one of those old lady Trollies as I gave in at 34 and just thought well I act old so might aswell everyday I notice something more what endo has done to me I feel lost and depressed with no goals other than to try and get rid of endo

Jltdance profile image
Jltdance

I don’t understand what we have to do to deal with this! Is this our life’s set out like this? Do we have to just try an cope? Coz we aren’t coping at all? Can anyone help! Luckily I made it through my wedding day and was fine thank god, but since then I haven’t had a good day.

Do you mind me asking what meds you are on and what treatment you have had?

Ludmin profile image
Ludmin in reply toJltdance

Congrats on the wedding and that it went as planned!! Next week I have an appointment with my gynaecologist to discuss treatment. So far I had one lap surgery, after that I was on Zoladex for 6 months and then got pregnant and breastfed my baby so for about year a half I had just one period. I swear this was the best year I had. So now that the pain and all the whole sh#tstorm of symptoms is back, we have an appointment to discuss it. She was talking about some clinical trial for a new drug, supposed to help with pain. But I don't know the details. I'm not sure I want to be part since it's new and who knows the side effects:(

racehorsedoc profile image
racehorsedoc

You're definitely not alone even when the pains are mostly under control 9im on progesterone only minipill which stops my periods) I still get the low days with no energy at all and seem to be constantly sick it stops you living a normal life. Makes it even harder when you see what other people are up to on social media!

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