Advice Please...Another Laparotomy in a few days

[Lioness36]

I had this unbearable Abdo pain and went into the ER again..An Xray was done and came out ok,but the Dr that saw me couldn't discharge me because I was still too I'll.She then ordered a CT Scan as she admitted me into the ward and I had two complications,one was medical n the other gynae.For gynae I have to ovarian Cysts 4cm on both my ovaries consisting of blood. I'm not sexually active I don't even know what caused that,though they suspect Endo since I've had that. I'm awaiting surgery to remove them, I don't know what to say to my family as this is my fifth major surgery. I'm scared, anxious too..And I'm In alot of pain that causes me to feel nauseous and vomit out of the Blu... How do I tell my family? What do I say to them?

[Moon_maiden]

Sorry you’re having to face this again, especially with everything else going on.

I’m not sure why your scared to tell your family. Have you had support with the other ops?

I can totally understand you being scared of the op, I was petrified, but not as bad as I imagined.

Do you know when the surgery is?

[Lioness36 in reply to Moon_maiden]

I lacked support on the previous ones and it led to me being secretive and facing my own challenges on my own...I don't want them reminding me of how many surgeries I've had previously. My operation is on the 1st june

[Moon_maiden in reply to Lioness36]

I’m so sorry you’ve been through this, makes it so much harder. This is horrible as it is.

You have support and understanding here.

If you decide to let them know, even if it’s text, be prepared for what they might say and if need be that you don’t need responses such as reminders how horrible it all is. Sometimes people say the wrong thing without realising how much it can hurt.

Is there a nurse that is understanding that you can talk to or ask if there is someone else. Chances are at the moment there will be. I’m sure it would help.

Please pm if it will help.

At least you won’t have to wait long and with a bit of luck this will help to get life back on track 🙂

[Lioness36 in reply to Moon_maiden]

Thank you so much for the encouragement Moon_maiden..It means alot to me as I'm someone who cannot express my emotions verbally but through writing.

So yea, joining this page is helping me daily, slowly but surely. I sometimes wonder what are my chances of conceiving since I've been opened several times in one area..and if I'll ever get the chance to carry a baby one day..Makes it hard to fall into a relationship too cause I'll have to explain to the guy what's happened to me and what if they won't stay...

It's just alot to take in

[Moon_maiden in reply to Lioness36]

Do speak to the consultant about having a baby, or write it all down and ask them to read it if it’s easier. I did when I first saw one last year, so much better.

I can’t offer any experience about having children, it must be very hard when you have doubts, this doesn’t have to make a difference, I’ve met women who’ve had endo and had children.

It’s an awful lot to take in, I hope you can get some direct support as well, you’re in a place where at least they’ll have an understanding about the condition.

How is your stay so far, food ok, tv?

[Lioness36 in reply to Moon_maiden]

I really wish I had that too...It's so stressful to go through things you sometimes don't even understand. .. I'm still a virgin too so it's all so scary to me I don't understand alot of things, I'm just a confused molecule but I do ask a bit about my condition.

Sometimes I feel it's too much info since I haven't been through some things such as pregnancy or sexual intercourse you know. But I'll note down a few things to ask before the operation day.

I'm staying wth my younger sister and my mom lives very far from me

[Moon_maiden in reply to Lioness36]

It doesn’t matter what the subject can be, we all go through the not understanding bit 🙂, it’s no different, just a lot closer than we’d like at times.

They haven’t kept you in until op, I wasn’t sure. Can you speak to GP in the meantime they may be able to help with some of your questions, or even the endo UK helpline. Don’t be scared to ask questions to the right people.

Do you know if anyone in your family has had it? I found out my aunt had it years ago, I know my mum had a hysterectomy in her thirties and after hearing the ins and outs, it is quite likely, but not diagnosed.

It’s good you’re getting treatment and help now rather than it dragging on.

What work do you do, or are you studying?