Hi all!
I’m considering getting my coil out next year as my partner and I are wanting to start trying for a baby.
My problem is, I am sooo scared to get the coil out!! Without the coil, my period is ridiculously heavy and painful and I’m scared that if it takes me a while to get pregnant (as I know endo sufferers often have fertility issues) I’ll spend months and months (possibly years) in agony!
Has anyone been through this/going through this? Xx
Hey i’m so glad to read your post as i thought i was the only one. I cried when I had my coil out a year ago to TTC. I don’t feel there is any awareness out there on TTC whilst managing pain and bleeding. I’m still not pregnant a year on (you may be totally different to me though!) and i’m now waiting for my tube to be clipped and for my 5th lap to remove endo, prior to IVF, so thanks to covid I now have to endure even more periods. The staff don’t seem to understand what it’s like TTC with endo when you can’t use hormonal treatments for the pain and bleeding. Sorry this isn’t very helpful but i just wanted you to know you’re not alone. There’s only one way to find out i guess. You may be ok and manage TTC. I went to my GP after 6 months so if you feel it’s not happening get checked out asap so you don’t have to wait for further tests.
Hi Millie
I'm sorry my experience isn't very positive I've been ttc for 4.5 years, 1 year an 2 months has been how long since I actually started treatment. In that time I was diagnosed with stage 4 endo. It's been hurrendous to be honest the more time goes by the worse I get. Unfortunately I've found I was diagnosed far too late, Ive had 3 failed iui's 2 fresh rounds of IVF. First resulted in a miscarriage due to quality(I'd taken every supplement under the sun for months to try increase this) my 2 nd round ended in empty follicle syndrome both due to endometriosis and diminished ovarian reserve according to my doctors. Once clinics are open again I will be trying with a donor embryo. There are many women with endo who have children no problem, I'm sure a fellow endo sister told me 5 out of 10 will have no problem conceiving.
All I can say is give yourself a set time of say 6 months of trying and then insist on being referred to a clinic. Women with endo usually meet a criteria to be referred sooner than the 2 years you usually have to be trying. Time really doesn't work in our favour unfortunately. X
Hi Natasha,
I’m so sorry that you’ve had such an awful experience 
I really am praying for you x
Thank you for responding to my post - I think I just need to get over my fear and try. That’s all I can do! Thankfully then endo community are so supportive...it really helps on the bad days and months! X
Hi! I was really scared too so I went to see a new consultant who specialises in Endo to get advice. As he was new to my case and it was 4 years since my last lap and my pain had been worsening, he did an MRI. He found I needed excision surgery to remove the build up and to give best chances of getting pregnant. I had the surgery and coil removed a couple of months ago and in conjunction with the surgery fingers crossed I haven't had any pain yet!
We've now started TTC and I got a book called The Impatient Woman's Guide to Getting Pregnant. I'd recommend it as it's easy to read, full of useful information and breaks some myths. There's a guide to how to prepare your body for pregnancy, some of which I think is similar to recommendations for managing endo, so worth a try to manage endo pain as well as hopefully becoming pregnant! Good luck!!
Wow, that’s amazing that you got the MRI before the lap! Thank you so much for you advice. Hope your months remain pain free! Xx
I had exactly the same fears as you, I have stage 3- had a operative lap April 2018, had the coil out in May 2019 with huge amounts of fear about the periods and actually conceived July 2019. I'm now 40 weeks pregnant awaiting the arrival of our little one..! So success stories do exist!
The periods were pretty awful I'm not going to lie, but I was still experiencing some level of pain with the coil anyway and therefore stayed on amitriptyline whilst trying to conceive (with the deal that I'd test regularly and come off it as soon as I found out I was pregnant). The absolute shocker was how heavy my periods were, I had to go back on tranexamic acid as I was losing quite dangerous amounts of blood in the two periods I had... So keep an eye out for that.
So, I was a very lucky I'm aware, but just thought you may need a positive success story too! Good luck! Xxx
I had a similar situation but decided not to have a coil put in so we could try.
I won't lie, my periods have been awful and hard to deal with but with a good GP and support it can be done. My GP is great, they understand and will do anything they can to help with pain relief etc.
As for TTC, we decided it could take longer so opted to start trying last year, I'm now on month 15. But as someone else said, you might be different, I know some poeple fall pregnant quickly and some people don't. Just one of them things that nobody is sure of :/
Hey! I'm 41 weeks pregnant and have been an endo sufferer for about 5 years. I too was really scared of not having pain relief BUT I'm so glad I did it. I came off my evra patch and within 2/3 months my normal cycle resumed. Pain was there and hurt alot for the first day but after that it would reside. My gyno gave me 2 sets of pills in case I needed them. One was a big fat pill to take incase I got extreme pain and another was to slow the bleed of my period in case I bled too heavy (sorry I can't remember the names!) But I never took them. Just made sure I ate right and went for regular walks and was doing everything I can to get pregnant fast! Fell pregnant after about 7 months and I am awaiting my first newborn any second! Chin up and focus on the goal. No pain no gain!! x
Hi I hope you are successful I was due to start ivf but it was all cancelled due to covid 19 and I'm 42 so I've decided to go back on the mini pill. I was on it for 2 years and no periods (bliss) but my gynaecologist said only try for 6 months with just sex and then start with ivf. It depends on your age, the level of endometriosis and if your hospital will fund you and if not you can take a loan out for the ivf. Best wishes for you and take care of yourself xx
Hi, I was in exactly the same situation! I had my coil out in Mid March this year. Like you I was dreading the removal, bleeding and pain. I have just had my 2nd period which came like clockwork, was pretty light and wasn't too painful. I haven't had periods for well over 10 years! So hopefully this is my new period, because when i was a teenager they were awful. Fingers crossed it doesn't take me long to conceive. Good luck, be brave and hopefully you will be pleasantly suprised.x
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