Ive just joined this so I am a tad nervous (silly I know), my mum encouraged me to join, she herself had this condition before and after I was born so she can relate to how I feel and is amazing. I have a fantastic Husband and family but I feel like Im boring them and I don't wont to worry then all the time.
I was diagnosed with Endometriosis last year after many many months of feeling so ill, I had previously 4 years ago had a laparoscopy and had the coil fitted as my consultant said this was the best thing for the condition but it wasn't properly picked up until last year. I initially felt alot better after having the lap and the endo being lasered away but now 8 months later Im feeling worse than ever, im seeing the consultant again on Wed and my GP is referring me to the Chronic Pain service but I just want to cry really, im fed up with having to take strong painkillers that make me feel like a zombie but what choice do you have when you feel so unwell!!!. I'm getting such bad miagranes with this condition (the consultant says the coil makes miagranes more common but he wont take the coil out as it would make the condition even worse) so I feel even worse.
The worse thing for me at the moment is my work I have reduced my hours significantly to help but at the moment the pain is so bad and I feel so unwell that its making it impossible for me to work properly. My manager has no understanding at all about this and is basically harrasing me about the time off so I'm currently fighting my cause at work with my union rep who is fantastic. I just feel like I don't know what to do at the moment. My GP has said that she will sign me off work at the moment as the stress from work is making me feel even worse but im scared il loose my job.
I'm planning a trip to the CAB soon as I feel there must be some sort of financial help available to me as I cannot afford not to work. Maybe looking for a job with less hours would be best I just don't know, my manager has said my high sickness absence due to this condition wouldn't look good on a future job reference but Im told by my union rep that they cant discriminate against me for this.
Im feeling so ill and stressed at mo. Does anyone out there have any advice or similar stories id love to know and chat ;-).