Pain due to cyst

[fdennis07]

Hi guys, I've got a chocolate cyst and got an MRI tomorrow to investigate further (I was diagnosed with stage IV endo a few years ago and have already had 3 surgeries to far).

I'm really struggling with the pain in my right side from the cyst, it is pretty much constant and I haven't had a decent night's sleep for atleast 2 weeks.

I am on naproxen and amitriptyline (10mg) and had to go to A&E yesterday due to pain. They have given me some co-codamel but it's not really doing anything.

Thinking about going to doctors tomorrow after my MRI to discuss pain relief and possibly to be signed off work for a couple of weeks until the pain is under control.

Any tips on what pain relief you have found useful?

X

[AllthatGlitters]

Hi.

I find codeine is helpful but it doesn’t take away the pain completely for me unfortunately but I have labour like pains.

Tens machine is also good.

Good luck with your MRI.

I struggled with right handed pain and had an MRI which showed a chocolate cyst and adenomyosis x

[Pedlar76 in reply to AllthatGlitters]

Have you had any treatment following your MRI results?

[AllthatGlitters in reply to Pedlar76]

Hi yes I have had 1 lap and waiting for ablation op as well as a scan to check the size of my cyst.

Also on meds x

[Pedlar76 in reply to AllthatGlitters]

How long did you have to wait for lap and did you have to push for it?

[AllthatGlitters in reply to Pedlar76]

My lap wait was a right carry on.

I was initially put into the urgent 3 month list due to my symptoms but 9 months later still waited. It was my GP who referred me to gynae and the consultant said upon looking at my cyst and symptoms i need a laparoscopy. I ended up going private for my op x

[Pedlar76 in reply to AllthatGlitters]

What meds are you on? I haven't heard of ablation?

[fdennis07 in reply to AllthatGlitters]

Thanks so much

[Merc11]

Hope your pain eases quickly. I've been diagnosed with stage 4 severe endo, I had a laparoscopy in November and they found a chocolate cyst. I was in excruciating pain since january last year until my op in November. I took Co codamol, codein, ibuprofen for pain relief, it seemed to work for a short period and then it didn't. It just used to take the edge off the pain for a few houra and then the pain kicked in again. I never slept for days as the pain used to get worse at night time. My hot water bottle was a god send though, I could not live without that maybe try that along with stronger codeine, but I'm sure you can only take codeine for a certain period of time.

Tell your GP also and he will probs prescribe something stronger.

Hope you feel better soon xx

[fdennis07 in reply to Merc11]

Thanks so much

[Katie22x]

I had a chocolate cyst last summer, the pain got so bad I was off work for 4 weeks. Only pain relief that worked for me was tramadol, it also made me drowsy so I was able to sleep a little better. Oh and my hot water bottle! That didn’t leave me side! Hope you find something that gives you some relief, I think taking some time off work sounds like a good idea too, if you can. Take care, sending hugs xx

[fdennis07 in reply to Katie22x]

Thanks Katie. Did u have surgery to have yours removed?

[Katie22x in reply to fdennis07]

No I didn’t. It was monitored for a while but it ruptured (which was very painful and I was admitted to hospital) but after that the pain began to ease. I should add that I was about 3 months into Zoladex treatment when the cyst appeared x

[Manisha9]

Hello Fdennis07,

I can understand your situation very well. I also had excruciating pain due to chocolate cyst (7 cm) and stage IV endo. Before that, I had one leproscopy as well for chocolate cyst but it reoccurred. I tried every pain killer and injections but all in vain. After extensive research on internet, I found one Homeopathic clinic in India, i.e. Welling Homeopathic. It may sound bizarre but my pain was almost gone within 1 week after starting their medicines. The intensity of the pain was reduced after taking 3-4 doses. Although I don't have any pain now but the cyst is still there and I was told that eventually, this will also go away. They will suggest you some yoga poses and diet plans. Here I am posting the link of clinic wellinghomeopathy.com/

They give online consultation also. I am taking online consulatation as I don't live in India.

[diww1 in reply to Manisha9]

How long have you had your 7cm cyst are you post meanapausal or not .. I've had mine diagnosed 18 months ago no idea how long it's been there I am post meanapause mine is 6 x 5 x 4cm

[Manisha9 in reply to diww1]

Hello diww1,

Sorry for the late response.

The cyst was diagnosed in January 2019. During that time, I was on pills (low dose) to manage endo. I had one surgery in April 2016 for chocolate cyst and adhesions, and after that, I was on Zoladex for three continuous months following six months periods on and off treatment. Even though I was taking treatment the cyst reoccured again and this time the pain was unbearable throughout the month. My gynecologist suggested to have injection of Zoladex but this time I was afraid because of the side effects I faced last time. During that time I searched for alternative treatment and found Welling Homeo. I am not promoting, I am just telling how I because pain free. Now and then I have little bit pain but It is nothing compared to what I used to have. I am still on the homeo medicines. I need to get done my TVS to check the current size of cyst. It was 7 cm when I got done TVS in August 2019.

[Manisha9 in reply to Manisha9]

I am sorry I forgot to mention my age, I am 30 years old and I have regular periods.

[diww1 in reply to Manisha9]

So glad you are better than you were

He difference with me is I am.poat meanapausal and had this cyst for over 12 years I've just been told by oncologist gynecologist .. he won't operate unless I loose weight first x

[Manisha9 in reply to diww1]

I am sorry to hear that. I hope you would be able to lose weight. Wish you good health.

[diww1 in reply to Manisha9]

Thanks very much x

[LEP1980]

I have stage 4 endo and large bilateral endometriomas. When my pain is severe the only thing that helps is morphine. At other times I use heat, rest and dihydrocodeine.

[fdennis07]

Thanks for your reply. Will u be having surgical treatment for your endometriomas?

[BetterFlyAway]

Hi,

I can understand what you are going through as I have 2 cyst on my left ovary and was diagnosed with endometriosis last May. I am due to have surgery in two week after waiting almost a year.

The things that help me relieve my pain is:

- Hot water bottle

- Meditation for pain

- vicks vapour rub

- Yoga

- Pilates

- Change in diet (E.g. More fruit and mostly green vegetables.)

- Cut out red meat because they contain a lot of hormones

- Eat more fish to balance the hormones in the body

- Drink lactose free milk as it's more healthy (contains B12) and it will make you feel less bloated.

- Hot baths/showers will help relax the stomach muscles

I really hope this helps! Take care of yourself!

[fdennis07]

Thank you

[fdennis07]

So doctor has signed me off work for 2 weeks to try and get pain under control and has now prescribed me Nefopan...never heard of this before tbh and not much online. Anyone else had this?