Still in pain and waiting for MDT, any ad... - Endometriosis UK

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Still in pain and waiting for MDT, any advice about pain relief?!?

Pureunicorn profile image
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Hi all, I've been diagnosed with stage 4 endo (bowel, uterus, ovaries ect all stuck together and may have gone into my bowel) and I'm waiting for the endo specialist to have an MDT meeting (happening 2nd march) in the mean time I've been trying different pain relief, so I'm now on the depo injection (suffering with hot flushes and headaches) but they have told me to have the 3rd as it can take that long for your body to settle down with it, I've tried codeine, tramadol, naproxen n I'm on Morphine but only at night or when I dont need to drive, the pain relief just aren't helping so any advice about what else I could try? Most of my pain is right side. Sorry about the long post and thank you in advance x

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Xroisinellenx profile image
Xroisinellenx

Hi, the only thing that has helped me is having zoladex injection, I was on prostap but that did nothing, I will warn you the zoladex injection it’s self is not nice it’s a very thick needle but after the pain of endo it’s nothing really. I would try and get in touch with someone and say your really struggling. Good luck xx

Pureunicorn profile image
Pureunicorn in reply to Xroisinellenx

Thankyou for your reply, I've seen on here that quite a few seem to be on that, maybe its something I need to speak to my doctor about, it's just so crap having to deal with endo and then life aswell!!! Everything seems to take ages and then when you think you are getting somewhere your back at square one again!! Xx

Xroisinellenx profile image
Xroisinellenx in reply to Pureunicorn

I would, tbh in 2018 I kept getting offered it and kept saying no I don’t want that cuz I was worried about fertility but start of 2019 my pain just got ridiculous to the point I was off work for 8months and was basically living on morphine and still in so much pain I was just waiting for my op but because my endo was so inflamed they could not even get rid of any of it so i had to go on these injections and now I’m back at work and no more morphine. Good luck xxx

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