Pain Relief: Does anyone know of any... - Endometriosis UK

Endometriosis UK

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Pain Relief

Lauramcg1 profile image
12 Replies

Does anyone know of any alternative pain relief options for endometriosis?

I’ve struggled with endometriosis for the last 14 years but I’m currently in the middle of a big flare up and have been off work since October. I had a laparoscopy 2 weeks ago but unfortunately the endometriosis tissue has now gone inside the wall of my uterus and the surgeon wasn’t able to remove any of it.

Over the years I have tried a number of different pain killers and hormone treatment but this time around I’m really struggling mentally with the side effects of medication.

I’m absolutely desperate to find some pain relief that doesn’t make me feel like I’m loosing my mind (ie. no Codeine, Tramadol, Oxyconde etc.)

I’m currently taking Pregabalin, paracetamol and ibuprofen (occasionally Mefenamic acid instead of the ibuprofen). The Pregabalin has really worked for me but not enough that I can get back to work.

Does anyone have any other suggestions on medication that has worked for them? I’m really open to any suggestions.

Laura xx

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Lauramcg1
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12 Replies
Shelly085 profile image
Shelly085

Hi Laura

I take voltorol suppositories along with co-dydramol. But just started prostap Injection before I go for my surgery

Lauramcg1 profile image
Lauramcg1 in reply to Shelly085

Thank you so much for replying. I’ve not heard of voltorol before so I will definitely look into it!

luthien profile image
luthien

I know it may be a bit weird and out there, but have you tried acupuncture? I haven't yet but it's on my list.

How about aromatherapy and massage? Reflexology? I know they all sound a bit odd but they definately work for me. They don't get rid of my pain completely but does help me manage it better and relax more. Mines just around my period so I have the aromatherapy massage before my period - your's sounds worse though, so don't know if it would help. The lovely lady I see is also a nurse so know's about endo which helps. I have oil rubs especially made for flareups.

The above stuff may sound odd, but it's been around for centuries so is worth a try; it'll probably be something you do alongside your painkillers.

I have physio for my lower back and do core strengthening exercises - as our core is weak from the endo and operations so our back can compensate. I found both those together definately helped my lower back pain during my flareups.

Just some thoughts x

Lauramcg1 profile image
Lauramcg1 in reply to luthien

Thank you :) I’ve been seeing a chiropractor recently which has helped but I may have to look into massage and aromatherapy.

luthien profile image
luthien in reply to Lauramcg1

I switched from chiropractor to physio quite quickly when I realised the chiropractor only deals with the spine and surrounding bones, they're not concerned about muscles and ligaments, hence why often they say to stop any exercise for the duration of the treatment and you'll find it may not help the endo symptoms but could help say a postural problem.

My exercise is the only thing keeping me sane! So I looked at physio and that's really helped as they look at the muscles, tightness and flexibility, and work to mobilise areas. In that way the body works better as it's all moving as expected.

It's a good idea to research the difference; just google chiropractor vs physiotherapist.

Be warned though that your chiropractor may not like any other treatment while they're treating you; I found that, which is why I didn't continue. They said I needed to sign up for a "course" of treatments - two days a week for 15 mins each, at £50 per session for about 6 months, I don't have that money and didn't see the benefits if I couldn't look into other treatments at the same time.

Now my symptoms have settled into a pattern:

My physio is £35 ish per month, for a 1 hour session.

Aromatherapy and massage £40 per month for 2 hour session, with £15 for an individual 200ml massage oil to use at home during my flareups which lasts about 4 months.

I go to regular weekly pole fitness classes, and core strengthening - both are definitely fun and with an amazing group of women whom all go through stuff similar to us!

I use a high strength CBD oil which is natural pain reliever and I buy from a company called Natra. It also helps with anxiety and doesn’t make you constipated like a lot of drugs do.

Lauramcg1 profile image
Lauramcg1 in reply to

Thank you :)

Whoisthis profile image
Whoisthis in reply to

How many ml do you take? I’m looking for a new brand.

Giagal profile image
Giagal

I found some good advice here: endo-resolved.com/natural-p... One of the best treatments I found was CBD oil and MSM powder both also help with inflammation

Lauramcg1 profile image
Lauramcg1 in reply to Giagal

Thank you :) that web page is really helpful! X

Buster69 profile image
Buster69

Laura, have you read Wendy Laidlaw's book, Heal Endometriosis Naturally: WITHOUT Painkillers, Drugs, Or Surgery and also have you tried blackseed oil? blessedblackseed oil.com ; I have heard a number of people with great success! This helps greatly to reduce the inflammation and hence pain levels.

Lauramcg1 profile image
Lauramcg1

Hiya, I’ve not read the book or tried black seed oil. Thanks so much for these suggestions :) I will look into both of them.

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