So today I had my second gynae appointment after waiting since March when I had my first! They gave me naproxen and told me to not come back before 5 months time, I’ve been waiting ever since August for an appointment. Anyway the naproxen didn’t touch the pain and I’ve just continued to get worse! I’m in pain day in day out, can just about walk and am shattered after a day at work! Along with irregular bleeding, pain when going to toilet etc. Anyway I had my appointment today, I was in the room no joke less than 5 mins! The consultant told me it was probably my pill. The pill that I’ve been on for 10 years with no problems until January of this year! Since then my issues have just worsened! She was rude, abrupt and dismissive! Luckily this time my mum came in with me and was more stubborn than me! So she said to her that my gp had advised I have all the classic signs of Endo and I warrant a laparoscopy especially as I will trying to start a family within a year or so. Before my mum had even finished her sentence the consultant pretty much huffed and puffed and rudely replied ‘well if that’s what you want!’
So I am now due to have a laparoscopy in 3 months time. I left the appointment almost feeling stupid and like I’m being dramatic about the whole situation! I’m now worried that if Endo isn’t found I’m just back to square one with no real support to find out my problem!
Just feel like I needed to vent and hear some advice I guess from others in similar situations x
She doesn’t sound like a very nice gynae...at least your GP is on your side. Would it be too late to ask your GP for a referral to a different gynaecologist for the laparoscopy and follow ups?
Don’t feel stupid. Some times you have to push for them to listen. If the laparoscopy comes back clear at least you’ve tried something to diagnose the pain rather than mask it.
My first GP kept dismissing endo when i suggested it. When i finally got referred to a gynae she was awful. She was a trainee and just didn’t know what to do or say. It was so awkward I went home so upset and put off.
2 years later after ‘dealing with it’, I changed GPs, she suggested endo and referred me to an amazing gynae who booked me in for a laparoscopy straight away. He diagnosed stage 3/4 endo and said I could require further surgery.
I’ve since done the rounds fighting with different doctors and referrals to the IVF clinic just to find my way back to him a year later and he’s booking me in for my 2nd lot of surgery for the rest of my endo and a hydrosalpinx.
It shouldn’t be this tough to get answers but if there’s one thing I’ve learnt is that you have to listen to your body and it’s alright to be stubborn and pushy some times
I hope the laparoscopy goes well and you finally get some answers. I find that waiting is *sometimes* just as hard as the pain.
It’s so difficult isn’t it just feel like sometimes they don’t want to listen and don’t want to help! I’m going to go back to my gp anyway because I’m scared if I don’t have an Endo specialist that they will say it’s not that etc and I’ll be back to square one trying to fight to find out what’s wrong with me! X
It shouldn’t be this difficult, but from being on here it sounds like so many people go through the same struggle.
Definitely make sure your surgeon has endo experience and you’re happy with them. It’s stressful enough going through the surgery without having to worry about what comes next. Hope it all works out for you and you get a diagnosis!
Thank you so much really appreciate people taking the time out to reply! Makes me feel abit more human haha and I’m not going mad! X