My story in a NUTSHELL.

[Zuzu7]

Hi All,

I've been on this site for quiet a long time now.. ever since I was going to undertake my laparoscopy surgery for the suspicion of endometriosis and here is my story in a nutshell.

For years, I have been suffering with irregular periods, abdominal pain before, during and after my period, heavy, light periods you name it I have had it all since I was 11 years ago. It disappeared for a year and came back like crazy (literally) I went on the pill for many years, as soon I was off it the pain came right back. For the past 3/4 years I have been seeing the gynae team on and off for just abnormal pain during and after my period. Endometriosis. Something I have never heard of was the word I kept hearing on and on and on again!

After finally, agreeing to book the laparoscopy surgery due to crazy pain that put me off my own life and in complete depression I undertook it. My GP, gynae doctors and the surgeon were ALL certain that it will be endometriosis.

I went into surgery that day in tears.. I was also the first in. After, my procedure I came out drugged the only question I wanted answered was " do I have endometriosis? " no one knew just how much I finally wanted to know what it is was that was keeping me in pain and awake for all those sleepless nights. And the answer? Was no. They could not detect or find any endometriosis. I did not know whether I should be happy or sad. Laugh or cry. Although, I was not diagnosed I was so very let down that yet, what I had remained a mystery.

I then suffered from bleeding, infections (E-coli) in which I needed 3 courses of antibiotics for, depression, loneliness, pain, BLOATING UNTIL THIS VERY DAY and just a very big burden on my shoulders. As the pain continued I went back on the pill for 6 months for pain break.... in which has caused me even more depression, loneliness, bloating and now chest pains. And so, in a nutshell my experience of this all has been very difficult and yet, no answers as to really what is my problem. On the basis that my pain got better on the pill I have been given an unseen diagnosis of endometriosis :)..... however, does that really help with anything?

And so this was my story in a nutshell. Some may think I may be lucky as I have not had a real diagnosis of endometriosis however, it is much more difficult to have to be within this bubble of having absolutely no idea of what it is that you suffer from..

I do hope some of you sufferers make any use of my story :)..

Sending love to everyone in our community ! xx