After a WONDERFULLY TERRIBLE appointment at my local hospital, I am now looking in taking my EndoDrama private
*GULP*
So far I have had ultrasound + MRI + AMH blood test that I paid for (but no one can give me clear results on, I was just given the number "14" but I have no idea what this means) and I am at my wits end.
I am 37 and have not had children but would like to one day if I am lucky...
Met with the NHS consultant yesterday and apart from being rude, eye-rolling my every question and mumbling so much I couldn't understand him, it's looking like the wait for surgery would be 6 months plus. Dr couldn't confirm if it wasn't anything more sinister at this stage and I'd just have to wait for the surgery and in the meantime take Zoladex, he literally just shrugged his shoulders at me.
I feel strongly this is just him putting me on the back burner. I am upset as I believe the side effects of Zoladex will outweigh the actual symptoms I have. I occasionally get severe pain/discomfort when passing urine but my bowel itself seems generally 'business as usual'.
I have been told I have the endometriosis (although undiagnosed officially) on my bowel along with three rather sizable endometriomas on my ovary. He went into detail about probably needing a colostomy bag after surgery and there is no way of telling its not cancerous until they get inside me.
But what if it is and I have had to wait for 6+ months?
I just don't trust this man I met yesterday, my gut is telling me to run run RUN especially after displaying angry body language and the huffs at me when I asked a question.
After signing a surgery form, abruptly shoved in my face and with no time to read over properly, I was just handed leaflets on cystoscopy, Zoladex and surgery for severe endometriosis and ushered out of the room.
Can anyone guide me towards the best London specialist for endo/bowel issues so I can get the ball rolling asap to be seen quickly and taken seriously?
Many thanks, in advance for this, I have never felt so alone and scared.