Consultant appointment for Cystoscopy: Private?

[LondonWiggy]

After a WONDERFULLY TERRIBLE appointment at my local hospital, I am now looking in taking my EndoDrama private

*GULP*

So far I have had ultrasound + MRI + AMH blood test that I paid for (but no one can give me clear results on, I was just given the number "14" but I have no idea what this means) and I am at my wits end.

I am 37 and have not had children but would like to one day if I am lucky...

Met with the NHS consultant yesterday and apart from being rude, eye-rolling my every question and mumbling so much I couldn't understand him, it's looking like the wait for surgery would be 6 months plus. Dr couldn't confirm if it wasn't anything more sinister at this stage and I'd just have to wait for the surgery and in the meantime take Zoladex, he literally just shrugged his shoulders at me.

I feel strongly this is just him putting me on the back burner. I am upset as I believe the side effects of Zoladex will outweigh the actual symptoms I have. I occasionally get severe pain/discomfort when passing urine but my bowel itself seems generally 'business as usual'.

I have been told I have the endometriosis (although undiagnosed officially) on my bowel along with three rather sizable endometriomas on my ovary. He went into detail about probably needing a colostomy bag after surgery and there is no way of telling its not cancerous until they get inside me.

But what if it is and I have had to wait for 6+ months?

I just don't trust this man I met yesterday, my gut is telling me to run run RUN especially after displaying angry body language and the huffs at me when I asked a question.

After signing a surgery form, abruptly shoved in my face and with no time to read over properly, I was just handed leaflets on cystoscopy, Zoladex and surgery for severe endometriosis and ushered out of the room.

Can anyone guide me towards the best London specialist for endo/bowel issues so I can get the ball rolling asap to be seen quickly and taken seriously?

Many thanks, in advance for this, I have never felt so alone and scared.

[CJR99]

I am so sorry to hear of the experience you've just had. Utterly appalling.

You need support and by a professional who has some serious insight into the disease. It is utterly debilitating for many of us both emotionally and physically.

Endometrioma's will be no doubt causing you lots of discomfort (I had a suspicious one in 2017). Please, please ask for a second opinion. You have the right to do this under the NICE guidelines. Yes, the waiting lists across the country are long but, if they need to do an urgent surgery you should pick that up in 3-4 weeks. I waited just that from my ultrasound in 2017.

I had to have a total hysterectomy/ovary removal....it all happened very fast.

I have recently gone private (I'm in Newcastle upon Tyne). My new consultant is in Liverpool. I have further excision surgery on the 20th. I cannot recommend him highly enough. I do appreciate this is not your area but, he is one of the most sympathetic consultant's I have met and also one of the top surgeon's in the country.

Please do DM me if you'd like the details.

I am thinking of you and just wanted to offer any support I can.

Best wishes,

Clare