Suspected Endometriosis - Can anyone relate?

[TiffanyWhite]

Hi There,

Sorry for the long post - This is my Journey

I've always struggled with my period, however for the past year I've been having unbearable pains, but speaking to my doctors they advised it was normal and due to the conception I was on.

In March 2019 I had my implant because the pain was too much - A month after removing it I still felt the pains and they were getting stronger, and more aggressive. I was unable to walk and unable to cope with the pain, taking strong pain killer nothing would help.

My partner than took me to hospital, where I was on morphine. They advised there nothing they can do as nothing came up on any test....( this was the same the following month) - As the pain worse again and I was unable to cope - This time they kept me in for the night whilst doing the same test, advising they couldn't find anything wrong with me.....

Months on..... Living in pain

I felt lost and alone - at this point convinced its in my head and just to carry on living in pain not sharing with anyone - Not even my talking to my partner

2 weeks ago - This time a different Hospital

The pain was unreal I could cope and had a panic attack, the pain was unreal I just wanted to die... My partner called 999 and advised I wasn't blacking out, the paramedics came and once again gave me morphine, however this time it wasn't working the - I was unable to walk, unable to move the pain was like someone was stabbing me over and over again, all I did was cry - I was still convinced it was in my head, and even cried to the doctors as my pervious doctors didn't believe me.

They advised I had a small cyst on my ovals but at this normal for a women my age, they said they are 99% sure this is endometriosis but cannot confirm.

They decided too keep me in and on Morphine for 4 days to help cope with the pain... They advised me because I was rushed in via Ambulance there is nothing they can do as this has been chronic pain for the months and not a cute pain... however they advised I wasn't allowed to be discharged until my pain had reduced. (All I wanted was my home and my bed) At this point I was on a double dose of morphine and other pain killers, this was slow helping the pain but never completely getting it of it.

Now -

At the moment the pain is still there but its like annoying period pain and I'm taking strong pain killers , tens machine and hot water bottles but it doesn't seem to do much.

I have a gynae appointment in October, but I'm scared that they will not find anything, yet again and that this isn't Endometriosis and I'll be at stage one again lost and feeling alone and it being in my head.

Is there anyone out there that can relate or have been in the same situation as me ??

I love too talk to someone regarding this.

Thank you for reading

Tiffany

[gemmab21093]

Hi,

I have had endometriosis since I was 19, after living with it nearly 7 years now I can relate to what your probably going through! It’s very hard to diagnose endometriosis because it doesn’t show up on any scan and it isn’t common in young people. I went through a stage when I was younger of feeling alone and lost because no one would believe me that I was in pain, the doctors kept offering me counselling and asking if the pain was real or just in my head! My advice would be to keep persisting with the doctors if you know something in your body isn’t right, it took me 3 years before my first surgery to get the doctors to actually listen to me!

[Marlie3]

Sorry to hear about your ordeal but you need to demand a laparoscopy. This way they can have a good look to see what is causing you pain. I suffered 9 years before being diagnosed, and it was such a relief when it was, as I knew it wasn't all in my head. Fingers crossed you get it sorted soon.