Tibilone side effects : I've recently... - Endometriosis UK

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Tibilone side effects

lizzyxx profile image
5 Replies

I've recently started taking tibilone which has improved some of my symptoms of the menopause but today both of my legs are really achy to the point where I can't even sleep. Has anyone else suffered with this side effect and knows if it will pass with time? Thanks x

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lizzyxx profile image
lizzyxx
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Katie22x profile image
Katie22x

Hi lizzyxx,

In the first 4-6 weeks of taking tibilone I had awful aching/restless legs, until I saw your post I didn’t even think of it being related to that but looking back it started when I first started taking it...it did ease though and now they hardly ache.

Xx

lizzyxx profile image
lizzyxx in reply toKatie22x

Glad to hear that thanks for your reply ☺ xx

7777melg profile image
7777melg

Hi , just looking for advice on tibilone tablets, how are you both on them now? I am 4 weeks post OP from total hysterectomy removal of Endometriosis and fibroids , I have been put on these tablets. Been on them 4 weeks now and they are giving me headaches the last few days and stiff joints is this normal ? .

Thanks

lizzyxx profile image
lizzyxx in reply to7777melg

I stopped taking it as it gave me worse side effects than the menopause does x

7777melg profile image
7777melg in reply tolizzyxx

Thanks for replying think I might do the same I dont like taking these tablets either . I was on the patches before and preferred them but I cant have any estrogen because of the Endometriosis i had .

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