Tibolone side effects

[courtneyhatts]

Hi,

I have had my first injection of my Zoladex and started my tibolone tablets which I take one a day. Currently been on these for about 3 weeks, my side effects have just recently started kicking in. I’m constantly feeling sick, drained, deflated,hot sweats, loss of my appetite and concentration. I know these are the side effects but it’s really bad and struggling to cope. Has anyone experienced these side effects and what did you do?

Thankyou

[Prettythings1]

you are not alone I feel exactly the same. Unfortunately I don’t have any advice. I’m still looking for things to help with my symptoms.

I have been on prostap which is similar to Zoladex for nine months because I can’t take HRT, but apparently it helps to alleviate the symptoms of the injections.

I hope you find something which will help

X

[courtneyhatts in reply to Prettythings1]

Hi,

Thankyou so much for your response, I hope you find something which helps you too x

[Prettythings1 in reply to courtneyhatts]

Thank you so much. I will let you know if I come across anything that helps.

I have got an appointment with the gynaecologist in May for the nurse can issue next 12 weekly injection

because I complained so much at my appointment. I’ve got to see the doctor before I can have another injection.

X

[635703]

hello, I’m so sorry this is rough for you! How horrid 🫂 💗🎢

I have been in a similar position but everything is milder for me and been on them for 2.5 years.

Obviously there’s persevering but I suggest you ring the Gynecologist’s secretary to see if you can get advice. They might give you an appointment. If that doesn’t work, then you can complain to Patient Liason and Information Service (PILS) for your NHS Trust. They are pretty good and you could get an appointment that way.

Sorry it’s another fight EndoWarrior but you have Sisters here for support. You’ve got this x

[courtneyhatts in reply to 635703]

Hi,

Thank you for your response much appreciated,

Just so grateful to have found this website and have so much support and advice from everyone x

[635703 in reply to courtneyhatts]

I love Endometriosis.UK and ask my sporty friends to fundraise 😅

[NW248]

Yes, I stopped taking it as I couldn't get an appointment to see the doctor so I just crushed up the tablets and took a little less each day until I was completely off it. I felt much better for that. My situation was a little different as I was post-hysterectomy and off Zoladex by that point.

[courtneyhatts in reply to NW248]

Hi,

Thankyou for responding,

U will try speak with a doctor if not gynaecologist and see what they advice, if not I will try your idea and see if that makes a difference x

[Livermax]

Hi, I've been Tibolone for about 6 weeks now, once a day and 3 weeks ago I started getting bad stomach pains wind and I'm constantly at the loo. It's driving me insane but it does help me with the side effects of prostap.