Hello all! I’m not entirely sure if this is the right place to be, but it’s worth a go. So for about a year/a year and a half now, I have been getting all kinds of weird symptoms/changes in my body. I have previously been diagnosed with an overactive thyroid from the age of 14, until I was discharged from the hospital around the age of 19. I’m now 21. When these recent symptoms began, at first I thought maybe it’s still to do with my thyroid, however I’d never really had anything like it before, so I ruled it out straight away. I think it all started with water infections which would happen fairly regularly, and then I started getting pain during sex, but nothing to do with deep penetration. It’s hard to describe it but it’s almost as if the whole of my walls are bruised and so when being penetrated, it’s putting pressure on the ‘bruising’ and causes discomfort - but not to the point where I can’t take it, it’s just not a nice feeling obviously. I was unsure what it could be and I would say to myself maybe deep penetration has caused some bruising... I'm sure it’ll go. But as a few months went by, it was still the same, and even just the initial penetration I would be uncomfortable. I’ve always had heavy periods, but for a few months in a row, I would get severe pain on the first day of my periods to the point where I wouldn’t really know what to do with myself. I’d have a burning sensation across the whole of my pelvic area, have diarrhoea, and then sometimes I’d throw up as well. When I first went to the doctors, my GP had me take a smear and other tests for pregnancy and STI’s etc. All of which came back negative and everything was fine apart from she found a patch of skin that looked abnormal. So I went to the colposcopy clinic and had further tests and scans done, again, all of which were absolutely fine and the gynaecologist told me ‘it’s normal to have heavy periods and I’m young so my body will be changing constantly and some people are just unfortunate enough to have severe pain but they live with it’ and the abnormal patch of skin seemed to be skimmed over - assuming it was normal. So after all of this I left it for another few months, thinking ‘the results say I’m fine so I must be over thinking it, or I just need to live with it like he said’. But then lots of small things popped up like sharp pelvic pains throughout the month, clotting in my periods, period pains when I wasn’t on my period, bleeding or watery brown discharge after sex, etc. And then I had a really bad episode on the first day of another period where I had a fever and severe pelvic pain, again to the point where I’m clueless on how to help myself. So I rang my doctor for some advice and he booked me in for an urgent appointment the following day. I explained all of my symptoms to a different GP and she said within 3 minutes of being in the room ‘I don’t really think they should have sent you for a colposcopy, I’ll refer you to a gynaecologist’. So I was bloody clueless at this point, thinking has the previous GP got it slightly wrong? So when I went to see the gynaecologist a few weeks back, I had another smear done and after finding nothing, yet again, and talking about all of my symptoms, he was left speechless/clueless and genuinely didn’t know what to say to me. He looked at his notes and I could tell how hard he was thinking, but nothing! Then he started asking me about my bowels, which I told him they weren’t perfect because they’re not, but they aren’t bad either. He said the only way I can find out if I have anything wrong with my is if I have keyhole surgery, but he said he felt really strongly that they wouldn’t find anything and he doesn’t want to put me through the surgery for nothing. He then suggested ‘if you’re having trouble with your bowels then maybe we should put you on some tablets for IBS for 4 months and then come back and see if anything has changed. But I felt really frustrated and kind of embarrassed that I had just told him all of this stuff about pelvic burning sensations, and pain during sex, and heavy periods and severe pain etc etc and he comes out with ‘maybe it’s IBS’?! And so I’m currently debating what to do as I haven’t been to pick up my prescription because I’m not keen on the idea of taking medication for something that I don’t really feel needs treating.
I’m sorry that this is so long winded but I’m hoping that the more detail I give, the more chance I have of someone being able to relate? Does anyone have any kind of idea what this could be, or if it is worth asking for the treatment? I’m just worried that the result will be that they cannot find anything and that I’m left feeling stupid and embarrassed as if I’ve made everything up, but most importantly that none of my symptoms will go away!
Thank you if you’ve read this far.
G