Hi all and apologies in advance for a long post. I am feeling so sad and desparte right now, but really glad to ahve come across this site for some support.
For the past year or so, I've needed to pee on a regular basis that seems more often that others. I thought maybe I have a small bladder or an infection. My GP just told me to 'hold for longer'. So recently I booked a private scan to see if anything was going on...
To my complete surprise, a large cyst was found!! It measures about 14 x10 cm. On the scan you could see it pressing on my bladder, which was full as I had to drink for the scan. She was not certain what type of cyst it is, but it is blood filled but no blood flow.
I was really shocked because I never have any pain, I do a lot of exercise, and eat healthily. I'm in my early 30s. My periods are regular and not painful, and I never have tummy pains before/during or after my period. I dont have bloating, and my tummy is flat so no external signs.
I quickly went to my GP to ask for a referral to a specialist, and luckily we have a local specialist centre here (which I didn't realise until now).
I saw the specialist, who conduct a pelvic exam and confirmed there was indeed a 'mass' on the left ovary. He said that it was mobile, which is a good sign apparently. He ordered some blood tests to check for cancer/tumour, which was very scary to hear, and referred me to their specialist sonograpger for another US. He said at this point he is unsure what type of cyst it is, but will most likely need surgery due to its size (He was so kind and caring, and happy for me and my husband to ask lots of questions). A week later I had the ultra sound, internal and external. The sonographer confirmed the cyst, and also said my right ovary had signs of scarring and adhesion (which has upset me even more), and that possibly my womb lining is slightly thick. She said taken together, this looks like endometriosis, however I have no pain symptoms, and my CA125 level was at 36. She moved the internal US a lot asking if I felt any pain, but nothing! She said it is definitely not cancer. And that it looks like endo, but she cant tell for certain. She also said, if I want kids, I am now quite old (I am 33!) and should start as soon as I have had surgery. She has referred me back to my specialist for further discussions.
So overall, I am in a state of sadness and feel very upset, for now being told it may be endo, and that I should have had kids many years ago. I feel like I have done something wrong! My husband and I wanted to try for a baby soon, and so are completely shocked by this. I keep bursting into tears, and he hates to see me in such a state and just wants to support me. And I keep reflecting that I tried very hard to eat healthily, and maintain a good fitness level in preparation for future health and being a mother. Sorry, feeling pretty desperate and upset. I have been really sad lately because my mum has been suffering from a sudden severe illness and we thought she was not going to make it, but through a miracle she is now in recovery and i just wanted to focus on her.
I will see my specialist again at the end of the month, and this will be to talk about having a laparoscopy to remove the cyst and reduce the scaring on the other ovary. I am so scared my ability to have kids will be reduced or non-existent. I didn't think 33 was that old, but now I feel ancient and helpless!! I also feel angry that my body has somehow let me know and I didn't do anything to make it better. And I feel angry I didn't try for a baby before, or at least find out my fertility level.
Thanks again for listening to my story. Does this sound like endometriosis, or is it an ovarian cyst on one ovary and scarring from a ruptured cysts in the other? I am guessing only surgery will provide an answer.