Hello, this is my first post here and I guess I just wanted a place to write everything down, to make sense to myself, and to get reassurance from others.
I’ve never really had the best periods, at school I would almost always have to have the first day of it off, because it was unbearable. I just assumed this was normal, and that everyone else went through this too. As I got older they seemed to sort themselves out, either that or I just got used to it. Fast forward to now, I’m 20 years old and at uni, and the past year or so, I’ve become worried. More than a year ago I decided to get the contraceptive injection, all my friends advertised it as being easy, not having to think about it, and having no periods. From the start, for a good 8 months or so, I was pretty much on my period all the time, which was incredibly upsetting.
I went back to the doctors, they stopped the injections, and I went onto the mini-pill. For a while things were okay, or at least better than they had been, with the bleeding every month, all month. But now, If my periods do stop, it’s only for a few days, and then it starts again. I just figured that the injection had really messed my cycles up and that I needed a while to get it out of my system, but it’s been over a year. The clots are huge, I’m in so much abdominal pain, and sex does hurt, or even triggers more bleeding. I went to the doctors a few times, but they didn’t seem as concerned as I did about any of this. At this time I also went for abdominal pain around my belly button which seemed separate to period pains, I was quickly told it was just a stomach ulcer, and ushered away with some tablets for it.
But things have been getting worse, and I don’t know if they’re all related. I’ve been having such severe migraines, at least one a week which stop me from going to university, and I just have to sleep them off, sometimes it even gets to the point where I faint. At this point, although everyone around me has told me to stop googling my symptoms, I jumped on the internet and have watched so many videos of other endo sufferers and sat through almost everyone going ‘this is me’. This also happened to be the same time that my pain is getting worse, not even the regular period pains I get, running across a room to grab something yesterday I felt a shooting hot pain up my left side.
I went back to the doctors this week, and although getting told it was probably nothing before, after telling him I had been bleeding for months, he’s booked me in for some tests next week, which, only being 20, I’m terrified about. He hasn’t really explained what will be happening, besides blood tests, a scan, and a swab, although I’m not sure what they’re going to be swabbing, I’m assuming the worst. This wasn’t ever something I anticipated happening until 25+, but I just want to know what It is.
I do have this sinking feeling that it’s Endometriosis, but everywhere I read says it says a long time to be diagnosed, or even getting mis-diagnosed. I’m just so tired, and weak, I feel like it’s ruining my relationships because I just want to sleep all the time, I’m just hoping for answers next week, but wanted to know from others who suffer from this, whether what I’m going through sounds like endo to you, and what to expect from here on.