Endo pain 6 years after hysterectomy... all over again

[giget40]

Anyone have suggestions? I had a lap to take out/diagnose endo 15 years ago. It helped but then had to have another one a few years later. After one more surgery they decided to do a hysterectomy leaving me with my ovaries. It really helped but now we are 6 years later and I am doubled over in pain. Went to the Dr who did my hysterectomy and she basically said she does not do anything for my case other than try a BC for a year and see how it goes. Also she said she does not do surgery any longer. I am seeing a specialist on Thursday so I hope they will really listen to me.

[ChloeV]

Good luck with appointment tomorrow. I had a total hysterectomy in December 2018 and the doctor said it was best to take the ovaries out too to ensure any remaining patches of endo do not grow/stay active. They excised a lot durin* 5he same op, but he said there was always a chance of recurring symptoms without removal of ovaries. Maybe you can ask what they think about this for you, if you are open to the idea. Hope all goes well.

[giget40 in reply to ChloeV]

Actually I would like another lap. I know people are scared of it but after all my pain... and from my 4-5 surgeries lap was the only thing that actually helped. I would love to hear tomorrow that she had another option but if not I will push for surgery. It is sad to say but that is the only thing that helped. Thank you so much for your support

[giget40]

Just got home. She is soo knowledgeable! Doing an ultrasound in a couple weeks and she is sending me to a pt for pelvic floor muscles being too tight to have a base line of what is going on. She said I could have a combo of both endometriosis and the muscles. NEVER heard of that before... But I will try almost anything to help with the pain. Thanks for your support!

[ChloeV in reply to giget40]

Good to hear you met someone proactive and that you trust. Good luck with everything.