Endo after radical hysterectomy? ? - Endometriosis UK

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Endo after radical hysterectomy? ?

AF1981 profile image
5 Replies

Hi! I had a radical hysterectomy in January due to stage 4 endi. 6 months later, I am feeling the same pains as of before surgery. Is it possible for the endo to be back? My doc did tell me he didnt get it all because it was attached to my walls.. I am on a hormone cream of progesterone and estrodial. Altho am very bad and remembering to use every day. I am tired, get headaches and in alot of pain most days again. Does anyone have experience with my situation? Thank you in advance!

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AF1981
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5 Replies

Hi I had a hysterectomy last September- I too had stage 4 . Did you have your ovaries removed? My doc told me I had to have both out as if either were left the endo would return.

Sadly I think as your doc said he didn't remove it all - the pain you are getting could be from the remaining endo.

Belle1971 profile image
Belle1971 in reply to

Hi love I had an oophorectomy in 2006 to remove the left one then the rest as in my womb and right ovary was taken out in 2012. The hrt caused my endo. It was then they told me the truth .

Belle1971 profile image
Belle1971

Hi that sounds awful. Mine wasn't exactly the same but the hrt that caused my endo was estradiol I'd go back to your gp the hospital told me that taking that or any hrt pill can bring it back.

Belle1971 profile image
Belle1971

I'm in Dorset I saw a gynaecologist in the royal Bournemouth he was very good and thorough. I'm 43.

Bevsymon profile image
Bevsymon

Belle I am on estradiol 37.5 and I'm very anxious about endo returning there is a lower dose of 25 I may give a go. I can't manage without hrt at the moment. How did you know yours was back? X

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