Kidney pain

[Telli686]

Does anybody else get extreme pain coming from their groin/ovary area and round to their kidney sort of area, with also a need to pee often? This is always at the end of my cycle, and its near debilitating its so painful? I had an ultrasound on my kidneys a fortnight ago and they said they were clear? I think my next step to diagnosis is a lap, did anyone else have these symptoms before/after diagnosis? Thanks lovelies xxx

[Doggiedogmom1973]

Hi Telli686,

My local GP doctor specifically asked me once if I got pain in my kidneys, as its possible to get endometriosis related pain in your kidney. I came across this artical recently from Doctor Tamar Seckins Website drseckin.com/endometriosis-...

He explains kidney related pain to you.

I hope this helps in some way.....xxxx

[Telli686 in reply to Doggiedogmom1973]

Thank you so much I will have a read! My gps have completely ignored the kidney pain and just throw antibiotics at the problem when I have no infection, the only one who finally listens is the gynaecologist u have to pay for, hoping to get to the bottom of it soon ! Xx

[Doggiedogmom1973 in reply to Telli686]

Yip, when I comes to endo, you've literally got to boss the whole world around, till you get the right specialists listening to you. You Go Girl!!! It's 2019, and soo many GP's don't have the awareness they should have when it comes to endo. Its totally worth going to a private gynecologist. Just make sure their main things is 'endometriosis surgery', else you're wasting your money...they need to know how to do 'deep-excision surgery'. They need to be totally skilled at treating endometriosis via laparascopic surgery, else you're not going to get good treatment. (ie, i had my endo 'burned off' by a gynecologist once who didn't even specialise in 'endo' and i was so mad afterwards as i didn't realise that burning off my endo left me even sorer by far. Also that website I told you about, that surgeon has written a really good book: "The Doctor Will See You Now", Author Tamer Seckin, M.D. Seriously a good read to get your life and pain in order, or at least under control. All the best and I hope I've helped.

[Thecraftyadder]

Yes I was getting bouts of this last year before my excision surgery. I was worried it was a stone. After my opp I found out the endometriosis (on my right uterosacral ligament) was mm's from one of my ureters. I read afterwards that inflammation there can cause your urine to back up and you get kidney pain. This makes sense. I'm now 4 mths post opp and my pain, urgency and twinges while going have thankfully resolved.

[Telli686 in reply to Thecraftyadder]

Thank you for your reply! I think after all the tests I've had, a lap is going to be my only option to finally figure out this pain! I will mention what you've said at my next appointment, hopefully he checks there we'll wnough, to be fair my newest gynaecologist seems pretty knowledgeable about endo ( finally I managed to save enough money to see a specialist after 10 years) he seems to think if anything, it will be endo on the nerves connected to my kidneys as he can't see any outward signs of kidney problems. I'm so glad the surgery helped you! Fingers crossed it does the same for me and soon 🤞🏻Xx

[Thecraftyadder in reply to Telli686]

I know it's very confusing. I had kidney pain, ovary pain, leg and hip pain, back problems, bowel issues. Some doctors thought it was my appendix. Some my bowel, others just dismissed me completely. It's so confusing. My GP was sure it was a gynaecological issue though. I also had to find the funds to see a specialist privately and he was great. Just wanted to get on with the laparoscopy. Hope you get some answers soon. X

[Vickysponge357]

Yes I get this. When I started to experience all of my pain and horrible symptoms back in November the gp first diagnosed a kidney infection as I was having urinary symptoms (needing to go again after about 15/20 mins but actually having being able to pass a fair amount rather the. That awful uti feeling of being desperate to go but not being able to! This did go away but then I realised that actually I just started spending more time in the loo changing positions and trying harder to empty my bladder), blood in urine, pain around my kidney as if is been kicked really hard and it’s very tender to touch. She first put me on antibiotics but then test came back with no infection, so then they said kidney stones but CT scan came back that my kidneys and urinary tract are fine, but I still get this pain around my kidney and every time they dip my wee there is blood present in there still. I’m still waiting on specialist appointments though so I am currently none the wiser about what’s going on!

X

[Telli686 in reply to Vickysponge357]

Sorry to hear all the pain you've been in, I hope they find answers soon! Thank you for your reply, I had a suspected infection last year where I was extremely ill, high temperature, kidney pain, the shivers, headaches, extreme pulse rate high, and the doctor gave me antibiotics and sent me on my way. Then about a month ago I had exactly the same symptoms but the doctor onbe again tested for infection and it was clear. Then I have an ultrasound and that's clear too? It's so frustrating when nothing is coming up and you're in so much pain but I'm hoping the MRI I just had will show something 🤞🏻Xx

[frita in reply to Telli686]

Hi! Did you hear anything back? My story is 100% the same as Vickysponge357. Never been diagnosed with endometriosis but I highly suspect it could be the case. Have been doing ultrasounds of kidney and bladder and everything seems normal. But I have blood in my urine and no infection. Pain to pee and pain in my kidney, everything feels so odd. Would be great If you could guys share your experience and what the doctor said since NHS is quite garbage and can't have appointments soon enough. Hope you all feel better!

[Telli686 in reply to frita]

Hi! I did but no answers in terms of my kidneys 😔 They have found signs of potential superficial endo but no diagnosis as of yet, it seems like I'll be going down the laparoscopic route! I wish you the best of luck Xx

[Rosiexx]

Hi! I don’t know if you take/what medication you take but I recently got a kidney infection because I was taking daily naproxen for pain relief (as directed by my doctor 🙄) and naproxen can cause damage to, and pain in, your kidneys.... just something you may want to be aware of in the future if you get kidney pain!! Xxx

[Telli686 in reply to Rosiexx]

Funnily enough I had a horrid reaction to ibruprofen last year and stopped taking anything other than paracetamol for pain relief. Thank you though that's interesting to hear, I have been refusing naproxen when it was offered as I was frightened by the reaction I had to nurofen ! Xx

[Rosiexx in reply to Telli686]

Ah okay, well ibuprofen and naproxen are both NSAIDs so that’s interesting! Probably best to avoid them then, I’m not going to be taking either any time soon since the kidney infection they caused. Hope you’re feeling better soon xx