New and horrible pain: Diagnosed with endo... - Endometriosis UK

Endometriosis UK

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New and horrible pain

racheles78 profile image
2 Replies

Diagnosed with endo last November following laparoscopy where most/all of the material found was burnt off. Currently on day 4 of my 3rd period following my laparoscopy. Haven't felt any benefit from the surgery yet but I know it can take some time. Usually by day 4 most of my pain has eased off. I still had a little lower back pain this morning but nothing too bad - even went for a run this morning. This lunchtime a new pain has started - never experienced this before. It's a sharp, stabbing very low abdominal pain on both sides. Literally has me doubled over and unable to catch my breath. Came on really suddenly. I've never had pain of this type before and rarely of this severity. I've taken 2 co-codamol (30/500s) but they don't seem to be helping a great deal.

Does anyone have any advice/thoughts on what this might be before I call 111 and potentially make a tit of myself?

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racheles78
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luthien profile image
luthien

Hello.

It can take up to 5 months to recover from a lap depending on what was done. Periods can be worse.

As yours was burned off the chance of regrowth is a little higher (compared with excision), having said that it won't have regrown just yet, so new pains may still be as a result of surgery / body healing.

Have you looked into physiotherapy? I had back pain, sciatic like pain, hip pain and coccyx pain about 4 months after my first lap. I always associated it with post lap. But when I went to a physio / mobility specialist within 20 mins of taking down my history he'd worked out what was wrong. He says he sees it in a lot of women; weakened core puts pressure on lower back, that becomes inflamed as it compensates causing inferred pain in other places such as groin, coccyx, legs, shoulders, neck, arms, hips. The general endo symptoms, bloating, period cramps and laps cause the core to become weak (abs), including pregnancy. I've worked with him to do massage, manipulation and core strengthening exercises. He says basically our core has been through so much we often don't know what it is anymore or how to engage it, so core strengthening is needed.

It may be something worth looking into, perhaps look at a sports injury / massage post op physio, and just talk to them; they'll let you know if it's muscles or something else. It means you won't feel stupid going to the hospital; they'll just give you painkillers as it's still post op and send you home.

Just a thought xx

endopositive profile image
endopositive

How are you doing now? Are you okay?

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