Not the usual symptoms. Advice? - Endometriosis UK

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Not the usual symptoms. Advice?

Alexef profile image
3 Replies

Hello, I remember researching Endometriosis last year when, coming to the end of my nexplanon life, my normal periods return. Which involves pain and non stop bleeding for weeks and weeks on end. When my new implant was put in, it all calmed down and I don't get periods at all anymore. But there is a daily ache on my right hand side. I wouldn't call it painful as such. Its been going on for months now . Its more of a dull ache on my lower right side, and lower right back. The ache increases when I have a need to go to the toilet. Bowel movements haven't been the norm these last few months and I never thought about leg pain until I read on here but yes, I've had odd leg pain very occasionally in my right leg.

Now, reading the symptoms and peoples posts on their own symptoms, mine are not as bad or as painful so I am unsure whether to suggest endo to my doctor .

Advice please :)

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Alexef
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lou002 profile image
lou002

Hi - yes, definitely mention it! Severity of symptoms don’t correlate with severity of endo, so you’d want to catch it before it’s too extensive if possible. I dismissed my symptoms for years as ‘not too bad’, and my surgeon said the extent of the disease was as bad as it gets (to be fair, the symptoms in the few months before surgery were horrendous), but I wish I’d caught it earlier. Everyone’s experience is different, but there is absolutely no harm in checking it out.

Rorydog10 profile image
Rorydog10

Definitely get it seen. I don't have classic endo symptoms at all so dismissed the idea and I was diagnosed with stage 4 basically everywhere during my lap.

Sounds like it could be bowel. The reason I went to my doc was for constant pin point ache in right lower abdomen that would flare up with worsening pain sometimes... Turns out my bowel there is fused to my pelvis.

That was my only pelvic pain symptom as my periods (I'm very lucky) are super light and painless only lasting 2 days.

My urinary symptoms have been on going for over 9 years so didn't accosiate them but turns out endo is in bladder and both uterosacral ligaments too.

Definitely go and get checked out. Ask to be referred and if you can find a BSGE centre near to you and get referred straight to them instead of your local gynae. It will save you alot of time and stress in the future xx

Alexef profile image
Alexef in reply to Rorydog10

Thank you both for your replies. I went to the doctors today and left my doctor a note about endo. With having this dull ache for several months now and before that tests and scans because of constant pains and bleeding, the doctor I have now seems really nice and keen to get to the bottom of it. Whereas before they've dismissed it as being my implant causing the symptoms. I went for a jog today and the ache worsens. It is interesting to know about your symptoms being mild but the stages was quite advanced.

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